Wednesday, November 26, 2008
Nov. 26, 2008 Wed.
Billie, his cousin, showed up after work to visit a little bit. We are going to have our Thanksgiving dinner delivered to the hospital by Billie and the whole family, if they are healthy. That will be a great picture op, right? Coach and Donna are going to come up tomorrow and visit for awhile.
We won't know anything about the vein mapping until tomorrow or the next day. I thought we would know today, but silly me, I forgot about hospital time that falls under the word "soon." The definition of "soon" is sometime in the next century or so, just teasing of course. Hey, it's all good and we will be all together. Angel and Aaron will be up to Boise and having Thanksgiving with Aaron's parents. They will be visiting with Will, too.
I will be leaving when I wake up in the morning. I will have five days with Will. Whoopee.
Hope everyone is getting ready for the good turkey day.
God bless
Tuesday, November 25, 2008
Tuesday, Nov. 25, 2008
Will walked downstairs and then he walked up four stairs today. What an accomplishment. Leaps and bounds, now. He had a visit from his cousin from Pocatello, Brenda, who is expecting our little great-nephew in a few months. Will's other cousin, Shannon, and his wife, Amanda, came up to visit also. He had dialysis this afternoon so he was pretty worn out.
Still he had great strides today and tomorrow he has to take a little trip to St. Als (hospital) because the docs want to have a vein mapping done. That is what they do so they can really look at the veins in Will's arms to see if they can put a "fistula" in for dialysis use. (Alert: new word, pay attention, please) A fistula is a vein they open up for permanent use for the dialysis people to plug Will into when he has dialysis. It is better for Will to have this because the one he uses now is a "tunnel catheter" and it is more prone to infection. There are two different ways they can do this but I will wait until the kidney doctor decides and explain that one. It's easier on me that way, because I'm just now learning all about it with the help of Will's nurse, Patricia, who use to work in a dialysis center.
I will fill you all in tomorrow night with what I found out. He will be tired when he gets done so he will probably have a quiet night.
God bless
Monday, November 24, 2008
Nov. 24, 2008 Monday
He had a lazy Sunday but we all need those now and then. I want to apologize to our Jerome basketball girls. I still haven't figured out the workings of my new camera. I know I'm doing something wrong and I will work on it over the Thanksgiving break and get a video up then. They are great pictures.
I only teach two days this week and then I'm back up to Boise again. Yea.
Won't be long now with God's good blessings.
God bless
Saturday, November 22, 2008
Nov. 23, Sunday
He didn't have any company until about 7 tonight. Then the "surprise" visitors showed up---Will's basketball team from Jerome came over. Just the varsity came to the hospital, Brent dropped the other JV and 9th grade team over to the mall. So they came into the cafeteria and were waiting for Will when he came down. It was emotional for him and I'm sure for the girls too, but it was the best. I got a new camcorder and I got it all on video but I have to figure out how to load them and I'm too tired tonight so I will do that tomorrow and you will see a good movie and you won't even have to pay money. They were telling Will all about he games and what's coming up (after they got over being so nervous) It was fun.
He is looking so good.
God bless and have a great Sunday
Friday, November 21, 2008
Sat, Nov. 22, 2008
We had another visitor from Will's coaching Hagerman boys days. Andy Stevenson came by to visit but it was during dialysis and he was very tired. I hope Andy comes by again because Will would have like t visit with him more. Before dialysis, he went downstairs and worked on his balance.
But the best news is....................................Will asked to have the vent taken out of his room. I wrote that for all our wonderful RT's at the University of Utah that tried and tried but he just wasn't ready for that to happen. So he has had another milestone (so many these last two weeks). The vent is no longer in the room and he says he's not going back on it. So he won't! (plain and simple). Praise God for all the blessings He is showering down on Will.
Tomorrow, Will is getting some "surprise" visitors. Don't worry everyone, they have been told that no one, no one, will go in Will's room if they have been sick, thinking about getting sick, or have been around other sickies.
Just another side note, Will's massage therapist, I mean nurse, is back from her cruise to Mexico and she's been telling us all about it. Will missed her so he's happy and he's all ready for bed now that she's given him his nightly massage. Teresa couldn't believe how he's changed in the 10 days she's been gone. I can't beleive the change either.
I will have some great pictures tomorrow for you. So stay tuned.
God bless
Friday, Nov. 21, 2008
Christi and her boys came over tonight after school and Will enjoyed hearing about what they have been doing. A good friend, Jeff Jester came up to see Will and Darwin Pugmire popped up for a minute. Darwin and Tom started working with Idaho Power on the same day so we have known him a long time.
We are expecting some special, special visitors on Saturday and I will have pictures for sure. (this is what the people in the writer's business call a "tease" to keep you reading.) Grandma and Grandpa Atwood came up to say good-bye to Will because they will be leaving for a few weeks to go see our family in Reno. They will be celebrating Thanksgiving there and going to watch the BSU/Nevada game this weekend.
My sister, niece, and great-nephew came up from California last night and I got to run over to my mom's house after school to visit. It's been almost two years since I have seen her. They will be coming over to Boise on Sunday to visit with Will and me. This will be a great weekend for Will, but then, it's been a great, great, week, hasn't it? I'm heading back up there right after school.
God bless
Thursday, November 20, 2008
Thursday, Nov. 20, 2008
I went up there to have a celebratory party with him but he didn't feel up to it so we will dance later. We want to thank you all for the comments and the words of encouragement you have sent our way. I read them all to Will and he really enjoyed hearing for you all.
The doctors have asked us to remind all the visitors that want to come up, Will is in a real fragile place right now, so if you think you might have any kind of bug, please wait and visit later. We have to be real vigilant because he is using all his reserves right now trying to keep breathing on his own. We would feel awful he he caught any kind of bug that set him back. I know all of you understand. He does love his visitors and it helps him to see friends and family (John T. you listening?) and I really credit that with his speedy recovery, oh, and the great nursing, PT, RT and physician care he has received in the last 8 1/2 months.
Will just keeps amazing all of us and we know, by God's good grace, that he is going to be coming home soon. We might be spending Thanksgiving in the hospital (won't be the first time) but we have soooooooo much to be thankful for. AMEN
Take care and God bless.
Wednesday, November 19, 2008
HE DID IT!!!!!
HE DID IT!!!!! 24 HOURS AND STILL GOING STRONG. THANK YOU FOR ALL YOUR PRAYERS.
WAY TO GO, WILL!
Please post congratulatory comments to Will for his accomplishment and I will read it to him when I get up to the hospital this afternoon.
Thanks-Terri
Nov 19, 2008 Wednesday
Will is on his big trial today. When he hits 8:00 am this morning, he will have stayed off for 24 hours, yes, you read it right. He has come so far and he WILL do it. Praise God.
The physical therapist had Will doing balance exercises. They even had him walking up a stair.
Tonight Billie, his cousin, and Sadie Kay, came to visit and when little Sadie (3 yrs. old) comes by to visit she brightens up Will's room just by walking in the place.
I will be going up to Boise as soon as school is out. We will be celebrating, I'm sure. Maybe what I will do is when I find out that he made it 24 hours, I will post it (just a short post). Then maybe we can all say of prayer of thanks for God's blessing on Will. I know I do every day anyway. We will be bringing him home soon.
God bless
Tuesday, November 18, 2008
Nov. 18, 2008 Tuesday
In the end he did 18 hours again, second day in a row. Things are really happening fast now. Tomorrow they will try for 24 hours. Then he can rest and then do another 24 hours. Maybe by the end of the week he will be staying off it all the time.
The doctor has told me that he would stay off from it for about two weeks before they decide to take out the trach and let it heal over. Usually by then we can tell if Will's reserve is built up enough to take over all the breathing. He still needs oxygen but we won't know how much till later. I think with the dialysis taking off so much fluid that it's has gotten so much easier for Will to move and breathe. I'm still learning what all this means so I will let you all know when I figure it out. If you have any questions, please feel free to ask them on the comments.
God bless
Monday, November 17, 2008
Nov. 17, 2008 Monday
Sunday, November 16, 2008
Nov. 16, 2008 Sunday
Speaking of being good, this young lady is Will's new girlfriend (I apologize to all his other girls)
He's found a winner. (Now for all you romantics-we are just kidding.) This is Will's aide, Fabiola, and she is just about the cutest thing ever. She's going to be a doctor some day, she's already pre-med. She gets so red when we tease her so, of course, we tease her a lot because that's the type of family we have. She made Will put his arm around her, but then look at his smile. She can really make him smile. (yes she is standing next to Will in his wheelchair, she's just a little short)
This next picture is of Will's old, old friend from high school. He told me I had to take a picture that didn't show his shiny, bald spot. I hope nobody can see Jason's shiny, bald spot. He would be so mad if somebody knew he had a shiny, bald spot. Jason, I don't think anybody can tell. But, seriously Will had a great time visiting because when they get together they talk SPORTS, SPORTS, AND MORE SPORTS, just what Will needs.
He did stay off the vent for 16 1/2 hours--new record!!! But Sunday he is supposed to try for 18 hours. He watched the BSU game a little but that much of a blow out isn't that fun. He had lots of company. We had a friend, Diane Perkins, come up that we haven't seen in a few years. Her son, Brandon, has CF, he's 24 yrs. old already. I know I wouldn't recognize him. Also, Will's Uncle Bill and Aunt Joan came up from Jerome to say hi. Aunt Karen from Twin also came up last night but I forgot to tell everyone and she didn't get her name on the blog so she's crying now. I hope this makes you feel better, Karen. LOL
Angel and Aaron came up for the day. Will was excited to see them. I took Aaron and went to find some more shirts for Will. He told me I had to bring Aaron with me because Aaron is a very nice dresser and he wouldn't let me buy old people's shirts like I did last time. We found a few.
Then when we got back Curtis, Jen and Cali came up. They visited with Angel and Aaron because Angel and Cali have this special connection and they haven't seen each other for awhile. Then Curtis and family stayed and visited Will and Angel, Aaron and I went to dinner.
BUSY DAY, so Will is sleeping really well now. They were only able to take off 2 1/2 liters of fluid. Hopefully Sunday will be a good day since they did dialysis today. The COWBOYS will be playing Sunday Night Football so Will will be busy tomorrow night.
Will wanted me to let everyone know if you wanted to come up, he's ready for visitors. He said that a lot of people come on Saturday but then not very many the rest of the week. The only thing we ask is if you have any sniffles, a cold, or the flu symptoms, please don't come up. He still has no immunity to germs. He will never be able to have people around him with bad germs. If you come up on the weekend, call my cell phone, if you come up on the weekdays, call Tom's. If you don't have those numbers, send me an email harbisonterri@hotmail.com and I will give it to you.
My sister, Mickey, and Missy, my niece, and Jeffery, my great-nephew, will be coming up from California on Wednesday. It will be good to visit with them.
God bless everyone and I hope you have a great Sunday. We will!! Will's just doing so much better. It's hard to describe how much progress he is making every, single day. I hope the pictures are giving you all some idea of how good he is looking.
Saturday, November 15, 2008
Nov. 15, 2008 Saturday
He was rolling his wheelchair back to the room after his PT and Kim White (our neighbor and good, good friend) was with Will. He decided to show off a little and so he walked down the hall without any walker in front of him. Amazing. I just wish I had more superlatives to describe this progress of his.
Christi, his cousin, was here tonight. They had a good visit and she just couldn't believe the change in him. She said the best thing was his big smile. He feels so good about his progress too.
Christi and he were joking around and teasing each other (and me) just like old times.
Well, I'm headed off to my Cherie's and Dad's house to get in the wonderful bed they have for us. Will is going to have dialysis on Saturday to see if that helps. I hope they do it in the afternoon so I can see him workout.
Life is wonderful. God is good.
God bless
Friday, November 14, 2008
Nov. 14, 2008 Friday
Here's AnnMarie with Will. She kept holding his hand but Danny didn't like it. Tough luck, Danny boy. She taking back with her tomorrow a good report to the University of Utah staff. Will had a lot of people asking her to find out how he is being treated and if he's getting everything he needs. Well, now they will rest easier.
I love this picture of Will because this was taken about 7 tonight and he had been off the vent for about 15 hours. I asked if he would let his cousins, Danny and Shannon, and Will's girlfriend (oops, I mean Danny's girlfriend) see him walk. He said okay but just a little one. Well, he walked all around the unit again. That's the first time I have gotten to see that long of walk. He looked fantastic!!! I still am getting teary-eyed. So, in this picture is Shannon, on the left. Next to him in back of Will is Danny and then of course sweet AnnMarie.
This is another great picture. The cousins and AnnMarie with Will on his walk. They had gotten Will a jacket from Cabella's (sp?) Even though he was hot, Will wanted to take a picture with the jacket on. They had so much fun together. They had Will smiling ear-to-ear with some of their stories. I really felt sorry for AnnMarie, but she's a lot tougher than you can imagine.
Thursday, November 13, 2008
Nov. 13, 2008 Thursday
These are our great friends from Hagerman Judy Osborne and Carrie (Osborne) Chizum. He enjoyed their visit but it was only a few hours since he had dialysis so he was pretty tired. We are so glad they came up even though Will wasn't us to his normal visiting talk.
Danny and AnnMarie were here for awhile but they came just in time to help us move. The nurses had to move the whole unit to the other end of the hallway. Will is now in one of the ICU rooms with windows so we are in new room like a fishbowl. Everybody goes by and waves to us.
He was really enjoying their visit but again, it was during dialysis so he slept a lot. They are coming back by noon tomorrow and spend the day with Will. They have a lot of stories for us about the U of U people, so we can't wait to hear all of them.
Will stayed off the vent for 15 hours and he had xrays this morning. His lungs are looking better than last week. Tomorrow he goes over to St. Als and has a CT on his lungs. We will let you all know when we know how those wonderful lungs look. Please pray for Will to keep on with his great progress. It's so unreal.
God bless
Wednesday, November 12, 2008
Nov. 12, 2008 Wednesday
Doesn't Coach look so proud, he thinks Will is doing all this exercising just for him. Well, I hate to burst his bubble (well, maybe I don't mind bursting his bubble) but they would make him do this no matter who is there. Sorry Coach, it has nothing to do with you. Will's neck muscles are still weak from being in bed all this time so that's why his head is down like that. He's been doing exercises to strengthen them.
Will rode the bike for about five minutes again but then Joel, Will's physical therapist, put a belt around Will's waist and had him pull Joel around on a wheeled chair. I don't think Will thought that was fair. Later in the afternoon he walked a little and then went down and rode for another five minutes. It is so amazing how well Will does when we can get the fluid off.
Kim and Richard and Riley and Hayley came up for a quick visit tonight. They couldn't believe how well Will looked. He's just doing wonderful. All the moving and exercising is really working well. I think the company is really helping too.
Tomorrow Danny and AnnMarie are coming from Utah to visit for a couple of days. Will is really excited. It will be nice because then I can see them too since I will be up there.
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I would be remiss in my education calling if I didn't acknowledge the Veterans that have helped keep our country free. My students had to write a letter to all the Veterans and thank them. They turned out so cute. I made a big bulletin board with them and then they had big yellow stars that they wrote the names of the veterans from their family. That went up on the board also. We have a few people from Bliss (where I teach) that are fighting overseas and I am going to make copies to send to them so they can read how much they are appreciated. I hope that all of you took time to thank a vet today. Where would we be without them???? (This is where you ponder for a moment). There, now my teaching is done.
God bless all of our veterans, not just today but everyday.
Tuesday, November 11, 2008
Nov. 11, 2008 Tuesday
He stayed off the vent again for 14 hours and he wasn't feeling well. I know they were talking about getting Will his dialysis early on Mondays because he doesn't get any dialysis on the weekend. When Monday rolls around, he really needs the dialysis. Well, I guess they didn't get the memo because they didn't show up until 6 tonight. He still walked and did his little work out.
Tom and Grandma and Grandpa went over the vision impaired service center. They saw a lot of things that might be helpful for Will when we get him home. There are so many "things" out there. We just need to find which ones will help Will.
The dialysis tech told Tom that he was going to get about 4 liters off from Will so tomorrow should be a great day.
I hope you all have a great Tuesday also and God bless
Monday, November 10, 2008
Nov 10, 2008 Monday
(Tom is there in the picture because he's itching Will's feet. They got really itchy tonight.
Here is Teresa, Will's nurse, Nicole, Will's night RT, and Will, of course. Will was just getting ready to be put back on the vent after 14 1/2 hours again being off the vent. He doesn't look too worse for wear, does he? He's doing great although today was a little rougher than yesterday because of his fluids on board. He was struggling a little more and he didn't really want to get up at all. He did, even though the nurses said he could have a little bit of a day off. He still walked out in the hall but then he started throwing up so he had to go back in his room. For some reasons, those nurses just don't think that the patient should be in the hall throwing up??????? LOL
Sunday, November 9, 2008
Sunday Nov. 9, 2008
Saturday, November 8, 2008
Nov. 8, 2008 Saturday
Well, you know what really got to me, when I got up here he was wearing pajama bottoms. We look forward to the little victories like this. He actually put the pj's on himself. It took awhile but he got them up. It's been so long and it was a good step. What determination this guy has!!!
Tomorrow, Saturday, we are going to try to get him in the shower. I know it will feel so good for him. Then he's going to take me on a walk around this loop. I don't know if Will is going to have dialysis on Sat. or Sun. Maybe we will play some games or something. I'm looking forward to the better days coming.
His Uncle Dave came up to visit today. He's the one that flies for Delta and this is one of his stopovers this month. (Usually he goes to Cancun or something like that). It was good to see him and he had seen Will in Utah quite a few times so he was impressed with what changes there are in Will.
Dallas Cowboys have a bye this week so I don't have to share Will with the Cowboys on Sunday.
I am definitely going to have some pictures up this weekend. I know he would have lots of company but there seems to be a bad cold going around the valley so a lot of Will's friends won't be able to come up (and we want to thank all of you for being so careful of the germs).
Our friends in SLC are experiencing snow already,but we had a gorgeous fall day today. Will had his massage from Teresa (yes, she's back after being off for a week) so he's almost asleep. He will have sweet dreams tonight.
Please say a great big thank you to our great Creator for the wonderful change that's happening with Will. What a blessing He is giving us right now and we give all the praise and glory to Him.
God bless
Friday, November 7, 2008
Friday, Nov. 7, 2008 1:19 AM
Will did sooooooo good today. Thank you, God. He walked all around the nurses' desk. That might be his longest walk yet!!!! They have him sitting up most the day and he was off the vent for almost-----drum roll, please--------12 hours. He didn't not have any more fever after I left and he's breathing easier. The doctors and the kidney doctor got together and decided that he might be needing more dialysis than he's getting now. So they did dialysis today, even though they did it yesterday also. They took 4 liters of fluid off, yesterday it was 3 liters. Then they will do more tomorrow and either Saturday or Sunday. He was turning in some rather high numbers on his kidney numbers so they are trying to keep them down. That could be what's turning him around. After all this time you would think that we would be use to Will doing things all messed up.
So I can't wait to get up there for this weekend. I will have Will take me out dancing one night. (That's what I told him on the phone tonight). He said even if he was feeling better he wouldn't do that. Kids can be so cruel (I think he's been around Coach too long). This will be a great weekend even without the dancing. Tom will come home and check on his horse. He was so excited about Will this morning doing all that walking. It was good to hear Tom's voice so upbeat.
Angel and Aaron were up visiting Will tonight. Tom went back to my dad's early to try to catch up on some sleep he missed last night. Brenda (Coach's sister and a good friend of the family) finally got to come up and see Will this morning. I know Will was looking forward to it a lot. She's just one of those people that you feel good just being around.
So here comes the weekend! I hope the snow stays away. I pray that Will continues his fantastic progress. I hope the friends from the U of U are reading this and know that he's doing better. I can't believe how many people read this blog.
Thanks for all the prayers and God bless
Thursday, November 6, 2008
Nov. 6, 2008 Thursday 1:09 am
The meeting was all about how well he has been the last three days. I hope I have been letting you all know that already. We had a few issues that we wanted to discuss with the doctor but he wasn't able to be there so they will get back to us. Will walked to the end of the hallway again today and he stayed off the vent for about 11 hours. He sat up in the chair for a long time, too. What a fabulous improvement!
So I get up to Boise and Will gets sick--no, really (I think he must be allergic to me). I was so excited to see him doing so well, too. When I got up there he just started his dialysis so he wasn't wanting to visit too much. I knew after he was finished that he would visit then. So sometime during the dialysis he spiked a fever. I don't know why but it started to go up. About 8 tonight it was about 103.6. He was just so cold, he was shaking. So they called the doctor and Will had some antibiotics going in his IV. When I left it was just about 100, so it was going down. Tom said he would stay with him for a couple more hours. I just talked to Tom and he said his fever broke and he was sleeping really well. Tom was headed to Dad house to sleep.
We did call our niece, Missy, and wish her a Happy Birthday tonight. She and Will are the same age. They are going to try to come from California to visit us during the Thanksgiving break.
Well, we will pray that the fever was just one of those freaky things that Will does to get my old heart pumping. Angel and Aaron are going to come up to Boise tomorrow night to go to Candace's parent teacher's meeting. Then they are going over to see Will. It's been awhile since they have seen him. Hopefully they will see a big improvement.
God bless and please pray that the fever doesn't come back. Thank you all so much.
Wednesday, November 5, 2008
Wednesday Nov. 5, 2008 12:10 am
Enough of politics, Will is doing so good today. He stayed in the chair for about six hours, he stayed off the vent about 10 hours. What fabulous numbers that is. Coach came up and visited with Will and they had a great time. Will went down to the therapy room with Coach, Grandpa and Grandma, and Tom and rode the stationary bike for five minutes. It took a lot out of him but he has made such good progress in just a day or two. I can't wait to see him tomorrow. Even though tomorrow is dialysis is tomorrow, I expect to see a different guy than I left on Sunday. I am going up about 2:30 so I can be there for a care meeting and discuss what's going to be happening with Will. I will stay for a while for a good visit and then head back. It is so wonderful to have him so close.
I went to vote after school and then I went to my old church for their election day dinner that the Methodist church holds every election day. I think half the town was there and I haven't been able to see very many people since I started living back in Idaho again. It was so fantastic to see everyone. Many, many people told me that every morning they read the blog and then pray for Will. It just boggles my mind how much love surrounds Will (and Will's family) and how many people know, without a doubt, that the reason Will is still here and fighting is because of that love and prayers and by the grace of our almighty God. God put these wonderful people in Will's life to be able to help strengthen him and us and we will never be able to say thank you enough.
God bless
Tuesday, November 4, 2008
DON'T FORGET TO VOTE TODAY
Will told me to tell everyone not to forget to get out and vote.
He had a lot better day than yesterday. Will sat up in a chair for almost six hours. He stayed off the vent for about 9 hours. That is for sure better than yesterday.
Some old friends from school, Jason and Mary Warr, came up to see Will. Will told me it was a very good visit. I have called a few of his other friends and want to call a few more. I have asked them if they would like to come and see Will. This is why we brought Will back to Idaho. He needs the encouragement you can only get from you close friends and family.
I am glad that everyone enjoyed the pictures that I put up about Will. I will try to keep putting more on the blog.
I think Coach is coming up on Tuesday to visit with Will. Will wanted to make sure Coach doesn't come down on a dialysis day. He can hardly stay awake to visit with anyone.
God bless and God bless Will. God bless our elections AMEN
Monday, November 3, 2008
Monday Nov. 3, 2008 1:05 AM
We had a great surprise tonight. Our nephews, Noah and Elliott (Christi's sons) came up to see Will. They didn't get up here until after 8:30 but we were able to sneak them in the back way. (It pays to know people) We haven't seen them since before we left to go to Salt Lake so it's been over a year. They have grown so much!!! Will was very happy to see them. They had to catch us up with about a years worth of news. They had been waiting patiently to be able to visit Will. They are such special guys and they got a pretty special mom too.
Saturday, November 1, 2008
Sunday Nov. 2
Here's the two "boys" just laying around--not doing too much.
Will went outside for quite a while this afternoon. It was overcast and almost raining so it was perfect for the all-the-time-hot Will. He loved it and the air smelled so sweet-too bad Will can't smell it. He stayed off the vent for ten hours today. We had a good day. I think I talked his ear off, but he likes it when I tell him what's going on in the outside world.
He's going to take a long walk tomorrow early and maybe we can go outside again. Dallas plays at two. Sometimes when I watch him sleep, his strength just amazes me. He just is like that energizer bunny-just keeps going and going. God put in Will all the ingredients that Will would need to help him through this time. WOW Our God is so wonderful to us. His presence in our lives is all we need.
I pray that God showers you with blessings. Go to church and glorify Him (or don't go to church and still glorify Him). God bless
NOVEMBER 1, 2008 SAT. 12:51 AM
Grandma and Grandpa brought Will up a little basket of candy so we could give some out to the staff here. That was very thoughtful. Thanks.
Here was our first trick or treater--Our Cali, Curtis and Jen's little 7 yr. old. She came as a vampire, or is it vampiress?? She was so cute when she came in, she had her fang teeth and everything. Isn't that a great smile on Uncle Will's face? She can make him like that just by walking into his room. Here's a cute story about that pumpkin at the bottom of the bed. Cali decorated it for Uncle Will and she drew four faces on the pumpkin--1) sad face 2)happy face 3) straight line mouth for okay feeling and then 4th) was the angry face. She told Uncle Will that he could just turn it to the one that shows how he's feeling and then the doctors won't have to ask him. That's just the cutest thing.
So Will put it on the happy face while she was here.
The picture above was when she was sitting on Uncle Will's bed. The lady behind them is the dialysis nurse.
Then after a little bit Billie brought Sadie and Kobe. Sadie was a mermaid and she had on the cutest little shoes. They made a lot of noise when she walked so she loved those. And Will's little namesake-was dressed as a chili pepper. Isn't' he adorable. He wasn't happy because big sister got all the candy but she told me he couldn't have any until he got big.
This last picture was of Maria, our aid (they call them PCT stands for patient care technician here). She came in to hold a little red chili so I could take a picture of Will and Sadie. He was being so good for Maria she got to hold him awhile. Aren't his eyes beautiful??
These sweet visitors came right after Will was done with dialysis so he had on three hospital blankets and he had me throw on his Cowboys blanket too. It's so strange to have him cold.
They took off about three liters today and he stayed off the vent for 10 hours. That's so much better than last weekend. He took a walk today that was so far this morning. Of course, when I got up here he was done walking for the day, but I'm sure that he will walk for me tomorrow. At least he will be able to sleep in a little tomorrow. I already can see he's doing much better than last weekend. He's looking forward to that. He did listen to a Celtics game tonight--Yup, it's that time folks. Go Green!!!!!
I hope that I get some more pictures from home and I will put them on the blog too.
We are going to have a great weekend and I hope you all will too.
God bless
Thursday, October 30, 2008
HAPPY HALLOWEEN!!!!!
We don't have kids on Friday because of parent-teacher's conferences so I miss all the costumes and the parties. I am really hoping I get to see some kids at the hospital. We will see, and I have my camera ready just in case.
Will has had such a better day. I told Tom that is wonderful, way to go. Then I get up there and he doesn't do so great and Tom thinks it's me. So pray for Will because Mom is coming up to Boise as soon as my last Parent-teacher's conference is finished. I didn't go up this week so it seems like forever since I have been there. I hope there is a big change and there is a lot less pain for him.
Will has taken several walks today and has been off the vent 9 hours. He rode the bike for about three minutes. The doctor came in today and told Will what a great job he's doing even working through the pain. That's Will
If I get any pictures, I will share them with all of you. Take care and have a very, very safe Halloween.
God bless
Oct 30 Thursday 12:47 AM
Will had to get up early for physical therapy this morning. They did get the dialysis to come in the afternoon so they can work with Will in the morning. I don't think he's too happy about that. He took a walk down the hall and then they put him in the wheel chair and had him roll himself back. That was tough because he weighs a lot more than he use to. Although today dialysis took off four liters, which is almost ten pounds.
His cousin, Christi, came up to see him this evening and stayed for a couple of hours. He really enjoyed that and then Coach and his dad, Sylvan, came up from Hagerman to visit. Grandma and Grandpa Atwood was over, of course, and Tom got away to eat some dinner.
The doctors are trying some new things today and hopefully they will start to work by tomorrow. The pain is beginning to lessen a little he said, but not by much. He just can't get comfortable. When the digestive system is all out of whack, nothing helps. The pain is pretty intense.
Many people have asked how my mom is doing. She is doing better and she is at her house now. We are relying on our friends and family to help take care of her. With conferences this week, I knew I wouldn't be around much. So thank all of you that have been taking her meals and just stopping by to visit. It takes a load off my mind.
So tomorrow will be a good day. I hope it will be a good day for everyone. I have conferences until late, I think my last one is at 7:30. Then half day on Friday.
Take care and God bless
Wednesday, October 29, 2008
Oct 29, 2008 Wednesday 12:29 am
The doctor is thinking about changing his tube feeds to see if that might help his situation. We will see.
Here is a cute site for some fun with a pumpkin. Halloween is just around the corner. My neighbor, Kim, decorated my house up for Halloween. I will be in Boise, but I love Halloween, and I think some of our nieces and nephews will be by the hospital, hopefully. Hope everyone is getting their costumes ready. Send pictures if you want so I can share with Will.
http://www.coasttocoastam.com/timages/page/pumpkin_sim.html
Coach is coming by tomorrow and visiting Will. That will be a nice change for the weekday. I will be going up early on Friday because I have parent-teacher's conferences Thursday and half day Friday. That will give Tom a little longer time at home, I hope.
Please God, bless everyone reading this AMEN Thank you all for being so faithful to Will. It still amazes me that so me people read this every day. I wish I had more to say, I wish I was funnier, and I wish you all knew how grateful we are.
Tuesday, October 28, 2008
Tuesday Oct. 28, 2008 12:17 AM
Tanya put another post on her blog and she seems to be doing great. She's something else. You can read her blog by just clicking on her name on the right of Will's blog home page.
I want to wish Will's cousin Billie a great big HAPPY BIRTHDAY, from him and us too.
We love you lots and lots.
I don't know if Angel and Aaron will be coming up here this weekend or staying home for trick-or-treaters. I don't know if Tom will be home either, so I will let you all know so if there is someone here, all you little goblins around Hagerman can come by and scare them.
Please pray that God just takes Will's pain away if that is His will.
God bless and thanks.
Monday, October 27, 2008
Monday Oct. 27, 2008 12:35 am
I told Tom I think it's me because he does pretty well during the week. He did sit up in the chair for three hours today and stayed off the vent for six hours so that was big because they had to get him back on the heavy drugs for pain last night and today. Hopefully tomorrow they will figure out the cause of the discomfort . He is doing better this last week and we want him to keep going forward, and he will.
Where there's a WILL there's a way
God bless and have a great Monday
Sunday, October 26, 2008
Oct 26, 2008 Sunday 12:12 am
Will wasn't feeling too good today and he was in a lot of pain but you couldn't tell. His company made him feel better. This is why we are back in Idaho, right??? Will stayed off the vent 9 1/2 hours today and he sat up a couple of hours. So he is going in the right direction. Still haven't heard anything about the cultures.
Saturday, October 25, 2008
Sat, Oct, 25, 2008 12:32 AM
They will do PT tomorrow but they won't do so much because it's a weekend. We listened to BSU beat San Jose off and on. Will thinks he has figured out what's giving him the skin crawls so he's going to talk to the doctor tomorrow and change the med.
We are looking forward to a good weekend. I want to cut his hair and give him a shave. Then he'll look so handsome. He's been having a little rough night but right before the shift change he was just saying that Teresa (the only nurse that gives massages before he goes to sleep) hasn't been here for a long time. Then Teresa pops up and she's here. Will was happy. She is just a special lady. There is a lot of them here though. I will try to get some pictures of them and that way you all know who I'm talking about.
I'm ready to go to my dad's house to get a good night sleep. They have been so good to us and they come up to the hospital every day. Again, we are very blessed.
God bless
Friday, October 24, 2008
Friday Oct. 24, 2008 1:12 am
The meeting was good and I was glad I got to be there. Will asked if I would ask for a few things for him. So I did and the staff was glad I brought it to their attention. It wasn't anything bad, just that people were forgetting that Will can't see and they don't announce themselves when they come into his room. Then they start doing things in his room and he doesn't have a clue what they are doing. So they will try to remember that. They do try to do everything they can to make him more comfortable.
The people at the meeting were very encouraged with Will's progress this last week. It was good to hear. The doctor thinks Will is getting stronger and that means that probably he's not going through rejection. If it was rejection then the lungs would only get worse without treatment. We still wait for the final results from that bronch. Should be coming in soon.
Curtis came by again this afternoon and spent some time visiting. That's what Will needs. Brent and Stacee also came over on their way to see their daughter Whitney. Will was pretty miserable by then so they didn't want to stay too long. They stayed long enough so Tom and I could go to dinner together. Haven't done that in a while.
Above is a picture done with a camera phone.It is Stacee Clark massaging Will's feet. You can tell on
her face that this is not one of her most enjoyable jobs.
She didn't like it but she did it anyway-Thanks Stacee!
Tom is going home when I come up there tomorrow afternoon. He is picking up Candace and bringing her to see her daddy and Angel, and they are going to take care of Grandma while I'm up with Will. We're tag teaming here.
So if the tests come in tomorrow I will let you all know. God bless
Thursday, October 23, 2008
Thursday, Oct. 23, 2008 12:52 am
Will sat up in the chair for an hour today and then after dialysis he got off the vent for six hours or so. He seems to be sleeping better but that itching is driving him up the wall. When we see the kidney doctors again we will ask them what's up with that. It has to do something with the kidneys and dialysis. Tom and Will have been listening to Louis L'Amour books on tape and they are getting along just fine.
Christi, his cousin came up for a visit tonight and she caught him up on all her boys doings. Will is really close to her boys and has been missing them but maybe they can come up on the weekend because, guess what?? He is out of quarantine----finally no more yellow gown and gloves. Yea for us---it really didn't matter to him that much because Will didn't have to wear them.
We haven't heard from the cultures yet but I bet they will be back by Friday. I will write about them tomorrow night and clarify what is rejection. It can be bad but usually it just means that his anti rejection meds need to be adjusted or he might just have to take a big dose of steroids. So we should know soon.
I am going up there tomorrow right after school because they are having a meeting at four for the family and the care team to let us know what's going on and what his goals are. So I should have a little update tomorrow night for you all. Then I will go up on Friday after school for the weekend. Angel and Aaron will stay with Mom and take care of her. Candace gets to come to Hagerman for the weekend so Tom will bring her back home when he comes on Friday.
So we are gearing up for a wild weekend. Take care and God bless
Wednesday, October 22, 2008
Oct. 22, 2008 Wednesday 12:11 AM
One of his old (I mean "old" in a good way) respiratory therapists from Twin Falls that use to take care of Will when he was little, came to see him. Her name is Jo and she's been our friend for a long time. I haven't got to talk to her since she saw him but I wanted to hear how she liked the place.
Thanks Tanya for updating your blog, you look FANTASTIC!!! If you haven't seen how great Tanya is doing with her new lungs-take a look.
Have a great Wednesday and God bless.
Tuesday, October 21, 2008
Tuesday, Oct. 21, 2008 12:11 am
Dr. Fuller is the dr. taking care of Will this week, next week it's Dr. Hendrickson. They take turns every week. Both of them are pulmonary doctors with lots of time under their belts. Anyway, Dr. Fuller was trained at John Hopkins, as I understand. So I'm thinking that is probably a pretty good training, right? Okay, so I still needed to be there to watch and make sure that he knew what he was doing.
All the machines were different than the ones used at the U. Dr. Fuller went down and looked all over. He didn't find any more blood down his lungs so even though he's bleeding at the trach, Dr. Fuller believes it's like before, just irritated from all the vomiting and coughing he's doing. I can't help but feel a little lost without Dr. Cahill watching out for Will. I guess this full trust will come in time. We don't even have Tauna and Kelly to be out angels in waiting. Boy, do we miss them.
Dr. Fuller couldn't find any real signs of infection but they did send cultures to grow and we should know something in 3-5 days (hospital time). Because they couldn't find infections going on, he's starting to lean toward rejection. He does have a call in to Dr. Cahill and they will get together and decide what course they want to do. We should know tomorrow, maybe. (Again hospital time)
After the bronch, Will slept because they really sedated him. So I stayed a few hours and then I went home. Tom hung out with him and when he woke up they listened to a book on tape.
I left about 7 which was very early but I knew he would be sleeping. I needed to get back to school and get some work done so I could leave after school tomorrow and go pick my mom up from the hospital. She is going to get out tomorrow when I get out of school. Will won't have dialysis tomorrow and hopefully he will get a full day of physical therapy in. They told me that they don't usually let them go this long without pushing and pushing but Will's breathing isn't that good so they are going to be very careful.
So that's the crazy day. I wanted to ask Tanya (because I know she reads Will's blog) to get on her own blog and let us know how she's doing. Will asks me every day but she hasn't posted for a while. So Tanya-----blog, please, for Will :) We are still praying for you very hard.
We are so so so blessed by our Father because He gave us such a wonderful family all around us. What would we do without all of you and you know who I mean. A big THANK YOU from us.
Here is Will's hospital, I think I gave it before but just in case I didn't here is it: http://siach.ernesthealth.com/index.html You can go on line and take a photo tour of the place and yes it does look like this. Remember, it's a new facility and there is only six patients right now. It's right next door to Bishop Kelly High School for those that are familiar with Boise.
God bless and goodnight.
