Thursday, October 30, 2008
We don't have kids on Friday because of parent-teacher's conferences so I miss all the costumes and the parties. I am really hoping I get to see some kids at the hospital. We will see, and I have my camera ready just in case.
Will has had such a better day. I told Tom that is wonderful, way to go. Then I get up there and he doesn't do so great and Tom thinks it's me. So pray for Will because Mom is coming up to Boise as soon as my last Parent-teacher's conference is finished. I didn't go up this week so it seems like forever since I have been there. I hope there is a big change and there is a lot less pain for him.
Will has taken several walks today and has been off the vent 9 hours. He rode the bike for about three minutes. The doctor came in today and told Will what a great job he's doing even working through the pain. That's Will
If I get any pictures, I will share them with all of you. Take care and have a very, very safe Halloween.
Will had to get up early for physical therapy this morning. They did get the dialysis to come in the afternoon so they can work with Will in the morning. I don't think he's too happy about that. He took a walk down the hall and then they put him in the wheel chair and had him roll himself back. That was tough because he weighs a lot more than he use to. Although today dialysis took off four liters, which is almost ten pounds.
His cousin, Christi, came up to see him this evening and stayed for a couple of hours. He really enjoyed that and then Coach and his dad, Sylvan, came up from Hagerman to visit. Grandma and Grandpa Atwood was over, of course, and Tom got away to eat some dinner.
The doctors are trying some new things today and hopefully they will start to work by tomorrow. The pain is beginning to lessen a little he said, but not by much. He just can't get comfortable. When the digestive system is all out of whack, nothing helps. The pain is pretty intense.
Many people have asked how my mom is doing. She is doing better and she is at her house now. We are relying on our friends and family to help take care of her. With conferences this week, I knew I wouldn't be around much. So thank all of you that have been taking her meals and just stopping by to visit. It takes a load off my mind.
So tomorrow will be a good day. I hope it will be a good day for everyone. I have conferences until late, I think my last one is at 7:30. Then half day on Friday.
Take care and God bless
Wednesday, October 29, 2008
The doctor is thinking about changing his tube feeds to see if that might help his situation. We will see.
Here is a cute site for some fun with a pumpkin. Halloween is just around the corner. My neighbor, Kim, decorated my house up for Halloween. I will be in Boise, but I love Halloween, and I think some of our nieces and nephews will be by the hospital, hopefully. Hope everyone is getting their costumes ready. Send pictures if you want so I can share with Will.
Coach is coming by tomorrow and visiting Will. That will be a nice change for the weekday. I will be going up early on Friday because I have parent-teacher's conferences Thursday and half day Friday. That will give Tom a little longer time at home, I hope.
Please God, bless everyone reading this AMEN Thank you all for being so faithful to Will. It still amazes me that so me people read this every day. I wish I had more to say, I wish I was funnier, and I wish you all knew how grateful we are.
Tuesday, October 28, 2008
Tanya put another post on her blog and she seems to be doing great. She's something else. You can read her blog by just clicking on her name on the right of Will's blog home page.
I want to wish Will's cousin Billie a great big HAPPY BIRTHDAY, from him and us too.
We love you lots and lots.
I don't know if Angel and Aaron will be coming up here this weekend or staying home for trick-or-treaters. I don't know if Tom will be home either, so I will let you all know so if there is someone here, all you little goblins around Hagerman can come by and scare them.
Please pray that God just takes Will's pain away if that is His will.
God bless and thanks.
Monday, October 27, 2008
I told Tom I think it's me because he does pretty well during the week. He did sit up in the chair for three hours today and stayed off the vent for six hours so that was big because they had to get him back on the heavy drugs for pain last night and today. Hopefully tomorrow they will figure out the cause of the discomfort . He is doing better this last week and we want him to keep going forward, and he will.
Where there's a WILL there's a way
God bless and have a great Monday
Sunday, October 26, 2008
Will wasn't feeling too good today and he was in a lot of pain but you couldn't tell. His company made him feel better. This is why we are back in Idaho, right??? Will stayed off the vent 9 1/2 hours today and he sat up a couple of hours. So he is going in the right direction. Still haven't heard anything about the cultures.
Saturday, October 25, 2008
They will do PT tomorrow but they won't do so much because it's a weekend. We listened to BSU beat San Jose off and on. Will thinks he has figured out what's giving him the skin crawls so he's going to talk to the doctor tomorrow and change the med.
We are looking forward to a good weekend. I want to cut his hair and give him a shave. Then he'll look so handsome. He's been having a little rough night but right before the shift change he was just saying that Teresa (the only nurse that gives massages before he goes to sleep) hasn't been here for a long time. Then Teresa pops up and she's here. Will was happy. She is just a special lady. There is a lot of them here though. I will try to get some pictures of them and that way you all know who I'm talking about.
I'm ready to go to my dad's house to get a good night sleep. They have been so good to us and they come up to the hospital every day. Again, we are very blessed.
Friday, October 24, 2008
The meeting was good and I was glad I got to be there. Will asked if I would ask for a few things for him. So I did and the staff was glad I brought it to their attention. It wasn't anything bad, just that people were forgetting that Will can't see and they don't announce themselves when they come into his room. Then they start doing things in his room and he doesn't have a clue what they are doing. So they will try to remember that. They do try to do everything they can to make him more comfortable.
The people at the meeting were very encouraged with Will's progress this last week. It was good to hear. The doctor thinks Will is getting stronger and that means that probably he's not going through rejection. If it was rejection then the lungs would only get worse without treatment. We still wait for the final results from that bronch. Should be coming in soon.
Curtis came by again this afternoon and spent some time visiting. That's what Will needs. Brent and Stacee also came over on their way to see their daughter Whitney. Will was pretty miserable by then so they didn't want to stay too long. They stayed long enough so Tom and I could go to dinner together. Haven't done that in a while. Above is a picture done with a camera phone.
It is Stacee Clark massaging Will's feet. You can tell on
her face that this is not one of her most enjoyable jobs.
She didn't like it but she did it anyway-Thanks Stacee!
Tom is going home when I come up there tomorrow afternoon. He is picking up Candace and bringing her to see her daddy and Angel, and they are going to take care of Grandma while I'm up with Will. We're tag teaming here.
So if the tests come in tomorrow I will let you all know. God bless
Thursday, October 23, 2008
Will sat up in the chair for an hour today and then after dialysis he got off the vent for six hours or so. He seems to be sleeping better but that itching is driving him up the wall. When we see the kidney doctors again we will ask them what's up with that. It has to do something with the kidneys and dialysis. Tom and Will have been listening to Louis L'Amour books on tape and they are getting along just fine.
Christi, his cousin came up for a visit tonight and she caught him up on all her boys doings. Will is really close to her boys and has been missing them but maybe they can come up on the weekend because, guess what?? He is out of quarantine----finally no more yellow gown and gloves. Yea for us---it really didn't matter to him that much because Will didn't have to wear them.
We haven't heard from the cultures yet but I bet they will be back by Friday. I will write about them tomorrow night and clarify what is rejection. It can be bad but usually it just means that his anti rejection meds need to be adjusted or he might just have to take a big dose of steroids. So we should know soon.
I am going up there tomorrow right after school because they are having a meeting at four for the family and the care team to let us know what's going on and what his goals are. So I should have a little update tomorrow night for you all. Then I will go up on Friday after school for the weekend. Angel and Aaron will stay with Mom and take care of her. Candace gets to come to Hagerman for the weekend so Tom will bring her back home when he comes on Friday.
So we are gearing up for a wild weekend. Take care and God bless
Wednesday, October 22, 2008
One of his old (I mean "old" in a good way) respiratory therapists from Twin Falls that use to take care of Will when he was little, came to see him. Her name is Jo and she's been our friend for a long time. I haven't got to talk to her since she saw him but I wanted to hear how she liked the place.
Thanks Tanya for updating your blog, you look FANTASTIC!!! If you haven't seen how great Tanya is doing with her new lungs-take a look.
Have a great Wednesday and God bless.
Tuesday, October 21, 2008
Dr. Fuller is the dr. taking care of Will this week, next week it's Dr. Hendrickson. They take turns every week. Both of them are pulmonary doctors with lots of time under their belts. Anyway, Dr. Fuller was trained at John Hopkins, as I understand. So I'm thinking that is probably a pretty good training, right? Okay, so I still needed to be there to watch and make sure that he knew what he was doing.
All the machines were different than the ones used at the U. Dr. Fuller went down and looked all over. He didn't find any more blood down his lungs so even though he's bleeding at the trach, Dr. Fuller believes it's like before, just irritated from all the vomiting and coughing he's doing. I can't help but feel a little lost without Dr. Cahill watching out for Will. I guess this full trust will come in time. We don't even have Tauna and Kelly to be out angels in waiting. Boy, do we miss them.
Dr. Fuller couldn't find any real signs of infection but they did send cultures to grow and we should know something in 3-5 days (hospital time). Because they couldn't find infections going on, he's starting to lean toward rejection. He does have a call in to Dr. Cahill and they will get together and decide what course they want to do. We should know tomorrow, maybe. (Again hospital time)
After the bronch, Will slept because they really sedated him. So I stayed a few hours and then I went home. Tom hung out with him and when he woke up they listened to a book on tape.
I left about 7 which was very early but I knew he would be sleeping. I needed to get back to school and get some work done so I could leave after school tomorrow and go pick my mom up from the hospital. She is going to get out tomorrow when I get out of school. Will won't have dialysis tomorrow and hopefully he will get a full day of physical therapy in. They told me that they don't usually let them go this long without pushing and pushing but Will's breathing isn't that good so they are going to be very careful.
So that's the crazy day. I wanted to ask Tanya (because I know she reads Will's blog) to get on her own blog and let us know how she's doing. Will asks me every day but she hasn't posted for a while. So Tanya-----blog, please, for Will :) We are still praying for you very hard.
We are so so so blessed by our Father because He gave us such a wonderful family all around us. What would we do without all of you and you know who I mean. A big THANK YOU from us.
Here is Will's hospital, I think I gave it before but just in case I didn't here is it: http://siach.ernesthealth.com/index.html You can go on line and take a photo tour of the place and yes it does look like this. Remember, it's a new facility and there is only six patients right now. It's right next door to Bishop Kelly High School for those that are familiar with Boise.
God bless and goodnight.
Monday, October 20, 2008
Will finally got some relief for the itching about 5 tonight. Then he was able to sleep about two hours without moving. I bet that felt so good to him.
Shannon came down around noon to do the play-by-play of the Dallas game. First of all it wasn't on TV so Will wasn't happy but at least we have the XM radio. Then I don't think that Danny is going to be replaced any time soon because Shannon didn't make it there until almost half time. What kind of commentator doesn't even know when the game starts? He said he would do better next weekend-we will see.
Than after the Cowboy's embarrassing loss, I told the clerk out at the desk to get Jerry (the owner) on the phone and remind him that he has a sick person in the hospital that is going to relapse if the Cowboys don't start improving. They laughed at that and then Ben, the tech, came in and said that Jerry's phone was busy. So at least we tried.
Will got to go out of his room for the first time today. He hasn't even been able to tour the facility yet. So we begged the Dr. and he allowed it as long as no one was in the hall. Will is still in quarantine so he had to wear a gown. He went outside on this beautiful fall day and he was too hot. I think Will would be too hot in a snow blizzard right now. So we didn't stay outside but at least he got out of his room. Hope we can do that again real soon. Sorry, I forgot my camera in the room.
Curtis, Jenn and Cali did get to come up. Cali didn't come in the room but she got to go to the door and see her Uncle Will. She hadn't got to see him in over a year. She was glad to see him finally. they have always been close. Then Billie and her two kids came up to see me, yes, just to see me....maybe I'm just wishful thinking. Anyway she went in to visit her cousin and I got to watch the baby Coby and Sadie Kay. It was great but Sadie told me that maybe next time I could have some candy for her and crayons. So I guess I will be going to the story tomorrow.
So I got a good kids fix today and Will got to see his family. This was why we fought so hard to get back to Idaho. It's great for him.
Will had another xray today and it looks worse. So they will be doing a bronch tomorrow early afternoon. I don't know if I am going to be up there or what. I will play it by ear. Dr. Hendrickson, Will's new head dr., said that because dialysis didn't do the trick in improving Will's lungs that it probably wasn't because there's excess fluid. So Dr. Fuller will be going in and looking around. They will be looking for infection or rejection. Dr. Hendrickson already has started four different antibiotics even before he gets his cultures because he didn't want to wait. The cultures will take a few days to grow out and he thought he needed to play it safe. Me too.
So he needs some prayers for the bronch to go well and let the drs. see what they need to fix.
Also, I need some more prayers for my mother. She's going in for shoulder surgery and will stay in the hospital overnight. Then she will be coming home to the kindness of her friends. I can't help her too much right now and I am so happy that she's blessed with friends that will help out. I wish I could take care of her and she knows that, but I can't right now. She will be having a long recovery it sounds like so we will see if she would like to come over to our house and stay.
Thanks to all my prayer warriors and I bless you all every day, for real.
Sunday, October 19, 2008
Let me explain these next pictures-I wanted a picture of my boys so I asked them to get together. Well, those of you that know Angel, know that she likes her picture taken. So while I was taking this, she snuck under Will's bed and got her head in the shot. So for the next picture we made her stand in the corner and I got a good one of the boys. It was pretty funny though.
Tomorrow his cousin is coming up to do the play-by-play for the Dallas game. No, it's not Danny, it's Will's other cousin, Shannon. Shannon and Will lived together while they were going to college and I really am glad I didn't know half what they did. Now they tell me and I just shake my head. Shannon, Amanda, and their three kids live in Mountain Home. He works for Idaho Power.
Will's xray came back as unchanged. They were hoping that it would be less density. So they will take another one tomorrow, Sunday, and if that hasn't changed they will do a bronch on Monday to see what's going on. He's having a miserable night tonight. He's really itching all over. Usually it's because he's needing to get the toxins out of his body, but you would think that after three days in a row of dialysis the toxins would pretty much be out of his system but that's not so. He even got double the benedryl the last two times and it's not touching it. Poor guy. Right now, I'm just packing him with ice so that helps for a little bit.
His night nurse, Teresa, is moving up to be his favorite from here (she can't replace his faves from the U until she puts as much time in as they have). She comes in and gives him all his meds at 9:00 p.m. and then she gives him a massage. His arms, legs, hands, and back. All the worry lines in his face just disappear. She's great and she's good for him too. She calls him the boss. He always has been but it's nice they getting the title right finally :)
He should have another fun day tomorrow with Shannon here and maybe Curtis might come back in the afternoon. I hope we can get the itching taken care of tomorrow. He's going to have all his skin taken off real soon.
Hope everyone has a great Sunday. I hope you all go to church and just listen to the Word. What a wonderful instruction manual for our lives. God bless
Friday, October 17, 2008
What perfectly beautiful weather we are having. These are my favorite types of days.
Grandma and Grandpa Atwood came up to watch the game (BSU) with Will while we went to dinner at Aaron's mom's house. And what a dinner!!! We had pork, steak and shrimp. Aaron and I made a pig out of ourselves with that shrimp. Linda, Aaron's mom, and Steve, great step-dad, made us feel so welcome and they really put on a dinner. We had a very good time with Aaron's family.
For those of you who don't watch as much ESPN as W do, BSU beat Hawaii. Way to go!
I forgot to put this cute picture on the blog, This is the funny nurse that dances for Will and with Will. I don't think she will make him dance the macarana (sp?) again any time soon though. Candace is in the background watching everything they do to Uncle Will.
Will had a great visit with his Uncle Jack, Tom's brother and Aunt Carol a couple of days ago. They haven't seen him in over a year and they are very close to Will. They use to take care of Will and all his treatments when he was little and we needed some help with those things. Jack had so much trouble with those gloves he had to wear. He never got them on right so I wanted to take his picture with the dumb gloves because it was all the gloves fault, don't ya know.
Will's three days of dialysis is over. They got over 26.4 pounds of fluid off from his body. He still isn't breathing too well so they will take some more tests today and see what's what. They called Dr. Cahill today and let her in on what's happening so she will get back to this dr. soon. We will keep watching everything and giving them our "input" (that's what I like to call it-it sounds so much better than "buttin' in") I will keep you posted. Please say prayers for him, they were talking that maybe it might be rejection. There are things that can be done right away if that is what we are dealing with. We will see. They might have to do a bronch early next week to tell if that's what is happening. Right now, we just don't know much. His blood sugars were over 400 tonight so they will turn off the tube feeds for awhile.
I will let you know when we know. Thanks for the prayers. Hope you enjoy the pictures.
The shortest distance between a problem and a solution is the distance between your knees and the floor. Amen!!!
Now this will shock all you people that really know Will. He doesn't do mornings, never has. Anyway the physical therapy people come in at 7:00 a.m. (Yes, in the morning!!!!) and get Will up to a chair. All you hospital workers that have taken care of Will over the years find that very, very hard to believe, I know. And yes the therapists are still living. this should show how much Will is ready to get back home. He is even getting up early. I will even try to take a picture because most of you won't ever believe just the written word.
He hasn't changed any of his vents setttings. He still needs more 02 but maybe after tomorrow's dialysis he will have a lot of the fluid off his lungs. He should be breathing easier.
Gotta get to bed so I will blog from Boise tomorrow
My son-in-law Aaron is turning the big 3-0 today so we will go to dinner with him and his family Friday night and celebrate the good day. HAPPY BIRTHDAY, AARON!!! We are so lucky that he was born because we needed him in our family.
Thursday, October 16, 2008
I just wanted to give you a quick update on him. I seem to be really tired tonight. I can't think of much to say. I will tomorrow though.
Wednesday, October 15, 2008
He has been having some trouble breathing the last few days and so the RT's have bumped him up to 60 % 02 (up from 40% when we got to Boise). We all feel like it's fluid built up on his lungs and around his lungs. So the dr. is going to try giving him dialysis three days in a row beginning Wednesday. This should relieve some of that. If it isn't then we will try other things. So that is a concern right now but hopefully it will be resolved in a few days. He's not really happy about dialysis for three days (which means he will be wiped out three days in a row).
The physical therapists (PT) got him up this morning and had him stand and sit and stand and sit to try to move him around a little bit. He has lost some of his strength this last 10 days so we need to start building it back up as soon as his breathing is better.
The speech person came in and wanted to work with him but there was never a time that somebody wasn't doing something with him. So she said she would be back Thursday. They just want to do some exercises to help the muscles that he uses to talk with because when he gets the trach out, his voice muscles are going to be very weak.
My mom went to Boise with me tonight. She hadn't been able to see Will in a couple of months so she was impressed with how well he is looking. I will be going back to Boise tomorrow (today-whichever, I never know if I should be saying what the day is going to be when you all read this blog, or what day it is that I'm writing it, I get so confused). It has really helped me being this close. I don't feel so torn when I'm at work and he's not doing so well-like now with his breathing. We still miss our friends from the U. We are getting a few emails from them with sweet words for Will (Thanks, friends!) .
Tom is getting everybody fixed up in that place. I think the only thing he doesn't like is that there is no Starbucks on the first floor. I bet the Starbucks at the U went out of business without Tom and his daily visits.
So I will tell you about his day tomorrow after I see him.
Tanya is still doing very well, I hope you all visited her blog site and read how she is so happy in her apartment.
Tuesday, October 14, 2008
I haven't talk to her yet but just to know she's home and her mom is staying with her is just making Will and all of us very, very happy. Way to go, T!!!
Will had a little rough day today because of dialysis. He threw up more than yesterday and was just feeling lousy. He started to cramp up in his arms but that's from taking fluid off. Sometimes that could be a side effect. He should be better by morning. Hopefully tomorrow they will get him out of quarantine so Will can go see the place a little.
I am going up right after school (because I can, right?). We need to see about some things and I want to be there for that. I hope then we will be able to take Will in the halls in the afternoon. Grandma and Grandpa Atwood are spoiling Tom horribly (but I'm glad because he deserves it so much). They cooked him a big meal for dinner and that is special for Tom because he's not around a lot of home cooking.
My mom came up to the school to help me get some of my work caught up. Aren't parents wonderful!!! Well I will let you know how he's doing after I see him after school. The comments are funny so keep them up. Will listens to them every night.
God has blessed us and now I hope He blesses you all.
Sunday, October 12, 2008
Angel and Aaron brought up Candace today again. It was so cute. Anytime I was there to do something with Will at his bedside-so was Candace. She wanted to know everything that anybody was doing to her Uncle Will. They made little pumpkins and put them in Will's window and colored him a picture. Aaron tried to watch football with Will but he just slept through it (Will, not Aaron).
It was another busy time in Will's room today. He did get off the vent for 4 1/2 hours today but it is having a little more trouble breathing so they had to give him more 02. He might have a plug that he needs to work up. His vomiting has lessened and that's good. He tried to sit in a chair this afternoon but he just couldn't breathe too well. So after a couple minutes he went back to the bed. Tomorrow will be better. He will have dialysis in the morning. Maybe that will take some of his fluid off his lungs and it will help him breathe easier.
I have some wonderful, fantastic news!!!!! Tanya, our CF buddy who had the transplant three weeks ago, will be going home tomorrow. She is just so excited, and if you want to see some of her pictures and read her blog, just click on the blog connection on the right of Will's home page. It will take you there. She is so, so happy. We are very excited for her. All of our prayers have been answered and I just know that she is not going to have any trouble with her two new lungs.
Saturday, October 11, 2008
Hey, it snowed here today and it stayed. I was just getting ready for summer-where did IT go???
We are missing our buddies from U of U so much. It wasn't supposed to hurt like this because this is such a good move. I know people come and go in your lives as God feels you need them, but they were a special bunch and we won't ever forget the kindness that they gave this our son. We will be keeping in touch with them for sure.
There's a cute day nurse that we've had both days here. She likes to come in to Will's room and dance for him. There's an RT that we like and she's from Texas so I'm really going to start saying things like Y'all. She's very knowledgeable too. So what I'm saying is the people here are smart but they are fun too. But man, I don't remember ever being this busy. Will didn't get to take a nap until about 8:00 tonight and then he's be woken up twice already. Poor baby...
But we are getting so much taken care of and since it's Friday we needed to get stuff rolling because on the weekends, things roll slowly.
Will is now able to have some water-little sips--but that's so subjective. Will's "little" sips are lots bigger than what they were talking about, but he's the boss.
I think he's getting rested from the trip and it won't be long before we are off quarantine and he can take a trip around this place. We will describe his routine and this place as soon as we have a few minutes to breathe.
This is going to be a good place, we know it's just what Will needs and as soon they know Will a little better things will run smoother. It will be a challenge for a while but Will's use to that.
I have loved reading Will all the email and comments that he has been getting congratulating him on the move. All of you have just been an incredible support for him and we thank you and thank you and thank you.
God, thank you for all the wonderful people that love Will and please pour blessings on their lives. AMEN (that prayer came from Will and his family)
Have a great weekend!!!!!
Friday, October 10, 2008
First of all, let me tell you we left a hospital that had hundreds of patients to come to this new hospital that has six--yes, you read correctly. That's all they have right now but they have full staffing for all. We have a one-on-one nurse, aid, RT, and maybe doctor. The doctor comes at 7:00 in the morning and leaves at 7:00 at night and all he does is work on these 6 patients. So nothing is going to be overlooked right now.
One of the bad things was that Will is in quarantine until 2-5 days culture grows out negative. So we have to wear gowns and gloves at all time. Angel really loves that. It's something they do and I don't know why. Also, they won't let Will have anything to drink until maybe tomorrow. They say they don't let people on vents drink because of possibility of aspiration. We tried to tell them that he's been drinking for about 5 months now with no problem, and that he's even eating pudding, jello, and mashed potatoes. But they were pretty adamant about it so we will see tomorrow.
The place is so clean and shiny with lots of windows. Angel and I were waiting for the ambulance to come and so we got to wait in the physical therapy room. Man, it is nice with all sorts of new equipment. It's going to be fun watching Will put them all to good use.
I am staying with Will tonight and then when Angel gets here in the morning, I will go to Grandma and Grandpa Atwood's house to sleep for a few hours. He is more comfortable with someone he knows here. I bet it won't take long for him to get to know these people. We meet with the care team tomorrow at 2:00 pm and they let us know what the plan is. So I will let you all know what they say.
This feels good to be this close to home. I know all of you want to come and see him. We want that too but we will make sure he can handle visitors before we can say "come on in" I hope all of you understand. We have really, really enjoyed all the comments, and we hope they keep coming.
God opened this door (this new place) for a very good reason. We know He has good plans for Will. I am very much at ease now that the transport is over. Thank God.
Hope you enjoyed the pictures I put up earlier. Take care
Thursday, October 9, 2008
Here's some old pictures I forgot to put up last week.
This is some of the staff that was "helping" Will when the end of the exciting Utah Utes game was on. It's amazing how many staff were in the room then.
This is Will watching the Dallas Game when the Cowboys made a touchdown. He's practicing his moves for when he becomes a ref.
Thanks for all the prayers and the comments.
I will update later tonight
Will is finally leaving Utah. His health team, that includes family, nurses, RT's, PT's and aides, thinks it's time to move him back to Idaho. He's not well enough to come home home but we have found a new critical care hospital in Boise. They can take care of all Will's needs and they specialize in vent weaning (getting people off the vent), physical therapy, and dialysis. It sounds perfect and they take Idaho Medicare. It's a new facility so everything is up and running and shining.
Several of us have gone and looked over the place-Grandma, Grandpa Atwood, Angel, Aaron, Tom, Will's cousins and myself. We have gone several times unannounced and dropped in on patients also. It has passed all those tests. The doctors seem to have experience in all of Will's "issues" --that's what term the docs are using now. I just know it's going to be a positive move.
He's still not doing so well, but maybe a new place might be the push that he needs. Who knows?
So this is the big news-Will is leaving the University Hospital at 7:00 a.m. on Thursday morning in an ambulance and Tom will be going in his truck behind him. Because of all the equipment Will needs and the people he needs to run the equipment, there's just no room for the dad. Angel and I will wait for them in Boise and we begin a new beginning. We took a few days off from school so we can help Will get settled. Our choice was not made easily and we need prayers that it will be the right choice for Will. Sorry we had to keep it a secret for so long, but Will wanted it that way.
The U of U has been our home away from home for the last 7 1/2 months. I can't even begin to describe how much we are going to miss all the people. There was a lot of tears these last few days, but we feel that it would be in Will's best interest to get him closer to home so he can have more family and friends to visit him. Of course we don't want visitors right away because he'll be settling in and getting his new schedule figured out. We will let everyone know when it will be okay to see him. It's going to be quite an adjustment for him, as you can imagine. I think we have to build Dr. Cahill a house so she will move up here with him, but we are willing to do that for sure.
Please pray for Will and our family. I don't know how much sleep we are going to get tonight but I will have a lot to say on tomorrow night's blog. Maybe I can even get some pictures up for you all. If not, I promise to do it real soon. How exciting and how scary at the same time. Will didn't want me to put this on the blog until he actually left because of all the times we have planned things and then something has come up and we couldn't do it. He didn't want to get everyone's hopes up. So I told him I would wait until the day he left to post it on the blog. I still can't believe he gets to do it. It will be good. It will be good. It will be good. Okay, I'm convinced now.
God bless and
Oh, Lord take care of us now. Amen.
P.S. Will's Grandma Cherie just had a big, big birthday(I don't know if she wants everyone to know just how big:). We wanted to wish her happy birthday with our love. Will said he will give her a foot rub when he gets to Boise. The hospital is only about five minutes from Grandma and Grandpa's house.
Wednesday, October 8, 2008
He was able to get up and walk a little this afternoon, probably about 20 feet Tom said. That's pretty good since he hasn't walked in a long time. Go Willie.
Dr. Cahill didn't come in but Tania and Kelly did. Will just loves visiting with them. I know tomorrow is supposed to bring another beautiful fall day. Please enjoy it with a big smile.
Tuesday, October 7, 2008
Speaking of keepin on--Tanya is moving up to the floor that Will's on tonight as I write this. YEA!!!! It's so amazing!!!! She has made such good progress-she should be going home this week sometime. They have found an apartment because she will have to stay around the hospital for about three months. Her family will be taking good care of her. I will definitely keep you informed.
I wish I had more to say, but I try to think of something and I'm drawing a blank.
Let me know if there's anything you might need to know.
God bless and keep reading our blog. It might get more interesting soon.
Monday, October 6, 2008
Will had some labs done today and a stomach xray. He's having some pain again. Tomorrow he will have a chest xray also. He didn't get up or get off the vent but tomorrow will be better. Tom will get him all lined up.
Hope everybody had a great weekend.
Sunday, October 5, 2008
Tanya is off the Bi-pap machine except at night. She doesn't need it during the day and she's using less and less 02. She's doing great. She made a lap of the nurses station for her walk today. . Wow. Will gets to go and see her Sunday afternoon for a little bit. On Monday she's had her new lungs for three weeks. She's already pink and perky, making everyone smile,but that's nothing new for her. God is so awesome, it's hard to believe just last month she was barely able to walk anywhere. Now this 22 yr. old gets to go for the gusto. We are so happy for her.
I think it's supposed to be very cold tonight so I will sleep with an extra blanket or two. Tom will be coming back this afternoon. They finished the flooring in Will's room. We took up the carpet and put wood flooring in his bedroom. We read that its much better for him to have that. I really don't know why I said "we" because I didn't help at all. Angel, Aaron, Kim and Richard and Tom did it. Thanks guys-Will's going to love it when he gets home.
There are a few changes that Will's team is making and we will tell you all when it's all done so Will needs lots of prayers right now. As all of you know, God knows what we need even before we do. So just pray for good choices for Will. I won't keep you all in suspense too long. Maybe by Wednesday we can finally let everyone know, but for now the prayers are gratefully appreciated again. Every time big changes happen, we all pray and so far it's been working-so all of our prayers are powerful. Will wants me thank you all for the continued support.
The Bible verse Will and I talked about tonight was Matthew 11:28 Come to me, all you who are weary and burdened, and I will give you rest. So every time we get tired of all this "stuff" it's a good verse to repeat to ourselves, right? Couldn't be more perfect right now. He's getting very tired of this constant vomiting. They should have some answers soon.
Tom was so cute today. He called and he was under his hay barn listening to the rain coming down and he was talking to his horse. He sounded 20 years younger. He's always loved the rain and then combined with his horse--he's got it all. So he's had a busy weekend but it was relaxing too. He probably won't like it that I said he was being cute. Sorry honey--and all you Idaho Power friends that read this-don't make fun of him, okay, well maybe just a little bit! hee hee.
Hope everyone has a great Sunday and your church fills your heart with the love of our Lord.
Saturday, October 4, 2008
Speaking of that,Tanya got her vent tube taken out today. I went down to see her and she looks so good. She was talking and everything. She didn't walk today because they just want her to practice breathing. What a trooper!! God is working wonderful miracles for this young woman.
Coach and Donna came up and Donna, Angel, and I went to Olive Garden. Yum-Yum! Coach stayed with Will and talked but Will just wasn't feeling well at all so he slept a lot. Coach doesn't seem to mind at all. Will feels badly but I think they are happy just hanging out together. Angel rode home with Coach and Donna this afternoon.
Will did dialysis today and they took two liters off. So hopefully he will be feeling better by tomorrow and we can get him up and moving. I want to take him outside but there's a storm front coming in tonight. So, we will see.
Oh, yes, Will had another visitor early this morning, before Angel and I could get up here. Tommy Connor, came up to visit Will. It's been awhile since we saw him and he brought us up some bagels and spread. How nice he was to do that. Will wants me to thank him but I don't have his phone number so I'm using this media to do that. Thanks, Tommy. Tommy is the Coach at Westminster College and Will used to be his assistant.
Today is the anniversary of the third month we have been on this floor. We have gotten very close to these nurses too. We still go down and see our buddies on the fourth floor too. I know I have said it before, but how blessed we are that all these people really do love Will and treat him like one of theirs. They have really touched us.
Enjoy your weekend and God bless
Friday, October 3, 2008
Coach will be here tomorrow so Will's all ready for tomorrow. Hopefully he won't be still groggy and feeling yucky. Donna is coming down with him so we probably will go out to eat at our favorite place "Olive Garden" yahoo!!
Tom is back in Hagerman with his horse so he's just chillin'. One of our nurses just got back from Nice, Italy, and she brought in all her pictures. So we had our own slide show.
Angel and I went to visit our Tanya. She is looking so good and they got her off the vent for a whole hour today. She did very well so they will probably be taking her off the vent tomorrow. She also got the last of the drain tubes taken out so she might be moving up to this unit real soon. What a fighter.....Even though she is soooo tough we still need to pray for her. Thanks so much. Hopefully we can get Will outside tomorrow.
Take care and God bless you all
Thursday, October 2, 2008
Will did get up and walk a little bit today. That's the first time up in a few days. Tom said he did really well. Will is going to be bronched this morning sometime. I will let you know how that went.
I haven't heard anything about Tanya so I will see her today when I get up there. I'll fill you in on her progress.
Have a good Thursday and God bless
Wednesday, October 1, 2008
Will is doing a little better today. He still didn't get up and walk but he stayed off the vent for most of the day. Tom said his color is a little better and he stayed awake longer. Dr. Cahill said that she might be doing a bronch but we will see.
I wanted to share with you a little tender moment. Will does have one once in a while, but he's still all about coaching so don't get the wrong idea. Well, when Dr. Cahill leaves Will after spending some time with him she always asks, "Who loves ya?" and then Will points to Dr. Cahill. Then she always says to remember that. We made a blanket for her and gave it to her. I asked Will to sign her card that went with the blanket. I know he can't see but he can remember how to write so I thought he would just put "Will." I came and got the card back from his table and he had written (a little scribbly, but who cares), "Remember who loves ya" Now doesn't that just choke you up? They are tight but after going through what they have together it would almost have to be that way. I just wish that all of you have your own Dr. Cahill and her crew in your life. That will be my prayer tonight.
I won't be going up until Thursday morning. I need one more night home so I can get some boxes unpacked from our apartment. It's like trying to cram two households into one. I think I need a bigger house! Tom, I'm just teasing....
Tanya is doing okay. Tom went down and saw her for a little bit. She had a lot of company. She sat up today for awhile and did her exercises. I know it won't be long before we see her walking out of this hospital. Way to go, Tanya. We will keep praying.
We miss everyone and can't wait to be able to visit. Life will slow down soon. Will always asks me what's happening in our area.