Tuesday, September 30, 2008
Tanya (our friend that had a lung transplant last week) is doing okay. She had a bronch done today and anyone keeping up with Will's blogs know what that is all about. So she was sleeping when Tom went down to see her. Tomorrow she will have a good day and Tom will get to visit. Will won't be going down to visit any time soon. Not a good idea for a while.
This is a short week at school so I will be going down on Wednesday night after school. Tom will come on home for a long weekend.
What beautiful weather we have been having. I know it won't last but it's so wonderful to have for a little bit.
Monday, September 29, 2008
Will had a good day. We went for a little walk this morning and then I took him in a wheelchair outside for a little ride. It was beautiful outside. We stayed out and visited and then we came back in. Will needed a little nap before the big Cowboys game. Thank goodness Danny showed up. Poor Will was sweating that he would have to listen to me for the play by play. Donna, you hit it right on the head with your comment from yesterday. Who cares??? :) Anyway, Will was sure glad that Danny was there even though Dallas lost. They always have a great time together. Danny is so funny.
They didn't do dialysis today, the doctors decided to go back to just three days a week and see if that will be sufficient. I hope so then he will have the weekend to get up and move a lot. Dr. Cahill is coming back today.
When Danny showed up, I met Tom at the apartment and we gathered the last stuff up and emptied the apartment. Tom will stay there on the air mattress for a few more days. When we got back to the hospital I had to get ready to leave. Will decided to ride down to the garage and see me off. He wanted to get out of the room again. I'm so glad. You know anytime he moves, he throws up and yet it doesn't stop him for going. I don't think I could be that way. So there was Will and Tom in the garage as I drove away. I don't think I want them to do that again. It was hard to see them trying not to cry, well in all reality I think they were trying not to cheer. Who knows??? I prefer to think of them trying not to cry.
I know this has been a question that many, many, many people have asked, but why does the weekend seem to fly by????
I do love Mondays though because I am blessed with loving my job so much. My kids make me feel so good about life.
God bless and hope everyone is going to have a great week. Tanya, that includes you. It won't be long before you are out of there. God has great plans for you- well, really for all of us.
Sunday, September 28, 2008
Will and I took a walk and then I pushed him outside for a little ride around the buildings. It was a beautiful September day. We wanted to go outside again in the morning hopefully. The big Cowboys game is on about 2:00. So then we will be watching TV. Hopefully Danny will be here to play by play but if he's not, then I'm all he's got. I think I do a good job, I just get a little confused. All I say is somebody has the ball and then they are running really fast and someone else is chasing them. I think that's good enough, right??? Sometimes they kick it too. (Is it any wonder that Will has any sanity left????) Danny better be here :)
We had a visit from Tania and then Kelly came up. Remember they are the transplant coordinators. They are some of the sweetest people I have ever met. We are very lucky to have them watching out for Will. They just came up to visit because they know I am only here on the weekends. Sweet. Dr. Cahill is out of town until Sunday night so I won't be seeing her this trip.
I got to see Tanya today. She is so wonderful. Still a big grin on her face even with that tube down her throat. She looks good and pink. They moved her to the intensive care unit that we were in for 4 1/2 months. In fact they are in the same room we moved out of. I will stop by tomorrow and see her again before I have to head back home to Idaho. Maybe I will take Will with me. That would do both of them some good.
Tom is heading back our way in the afternoon and then I will be heading back. Angel and Aaron called Will and said they had a great time taking some kids to the big park and feeding the ducks in Boise.
Have a wonderful Sunday and God bless
Saturday, September 27, 2008
Will didn't have a good day although he had a great visit with his buddy, Coach. He came up about noon and left late afternoon sometime. I got up here about 7:00 and Will was looking so tired. He told me he had been throwing up much more than he has been. Darn, I wish he could just get over that issue. I will talk to the doctor tomorrow and see why she thinks he's a little worse. I will let you all know.
They did get off 2 1/2 liters today and then he has dialysis again tomorrow so I don't know how much he will be able to walk. But even if he doesn't walk, I will try to talk him into taking a wheelchair ride outside for a little bit. It should be a beautiful day tomorrow. I hope all of you get to enjoy the day with your loved ones too.
Tom is home enjoying his horse and his family and friends, probably in that order too. Angel and Aaron are enjoying their time with Candace in Boise. Tom and I passes each other on the freeway again this weekend. We just talk to each other on the phone and then wave when we see each other. Isn't that cute???
Share a smile with someone who needs it. God bless
Friday, September 26, 2008
Will still isn't feeling that great. He seems to be having a little more trouble coughing and he's throwing up more than he has been. So he really didn't feel like walking although he did walk two times. He stayed off the vent most of the day. Angel called him on the speaker phone and gave him a bad time, so that was fun to listen to. That's normal for their conversations.
Angel and Aaron will be going to Boise again this weekend for their weekend with Candace (Aaron's daughter).
Today Coach will be up about noon to visit and hopefully Will won't be too tired from dialysis to visit. I think they have a football parley figured out and they need to make sure they have all the games scheduled.
So I will be blogging you next time from the hospital.
We need some serious prayers for Tanya, our buddy who just had her lung transplant last week. They had her off the vent yesterday but one of her lower lungs collapsed and they had to put her back on it. They gave her a transfusion today also. You can keep up with her story on her blog at 4everbreathe.blogspot.com She has good pictures of her on that too. Her aunt is keeping everyone updated as they can. Tanya is a tough little gal and she will keep fighting. Still, we need prayers, for her and her family. Thank you.
Take care and God bless
Thursday, September 25, 2008
Nothing much happened today. I didn't get an update on Tanya but I will today for sure. Friday's coming fast.
Wednesday, September 24, 2008
Tuesday, September 23, 2008
Not much went on today. Will wasn't feeling well so he didn't want to walk or anything. He has days like that--don't we all?? He did have dialysis and they took a couple of liters of fluid off. Then Tom beat Will at cribbage. Way to go Dad, he's feeling bad already. Kick a guy when he's down. No, just playing, I think Will is still ahead in the points totaled.
Well, Tuesday will be a much better day. We didn't hear anything about Tanya but we should tomorrow. I forgot, Will did eat some homemade pears (thanks Aunt Gloria) and they stayed down. I think he ate four or five bites, now that's progress.
Have a great Tuesday and God bless
Once again, isn't that amazing--70,000 hits on this blog
Monday, September 22, 2008
I'm back home in Hagerman tonight. Tom was back in SLC about 6:00 and then I left about 7:00. My Aunt Gloria and Uncle Bill sent up some fresh fruit from their orchard to give to the nurses and staff. I wonder if that's the reason we don't get to go home. They would lose their fresh fruit??? Hmm...something to think upon.
Will and I went outside today. We found a shady place where nobody was around (because Will is still having lots of trouble with his vomiting) and we sat there and enjoyed the breeze. It was so nice and we didn't want to go back in but all good things must come to an end (I can't remember whose quote that was). He took a good nap and then Danny and friends came up to watch the Dallas game. They decorated his room and I do have pictures but I'm too tired to put them on tonight. I will tomorrow. For those of you that didn't watch--Dallas won YEA!!!!
Dr. Cahill will order something tomorrow so Will can get that MRI done. There is some talk that the same thing that took his vision during surgery might have caused something to go wrong with his inner ear or something. Maybe some type of vertigo. So they need to play this through and find out whether or not it's the reason. The only way they can check is to do that brain MRI. They have tested almost everything else to try to stop the vomiting every time he moves.
So hopefully this will tell them something. Pray for him to be able to get the MRI done in the next couple of days.
Hope everyone had a great weekend and are ready to go back to work.
Sunday, September 21, 2008
Tanya is doing great and thanks for all the emails checking on her. She is still on the vent because she is still requiring more oxygen. She is sitting up in a chair and Dr. Cahill is very pleased with what she's doing. Dr. Cahill told Will that she would like to have Will go down and see Tanya sometime this week. That would be so great. I wasn't able to see her this weekend because I have got a little cold I think. I'm not taking any chances with Will either. I'm wearing a mask the whole time I'm in his room and I'm sanitizing my hands every two or three minutes.
Tom went to a Jerome girls' volleyball game today since he's home. He saw a few of Will's "girls" and they sent Will messages. What a great bunch. Tom spent some time with his brothers and then most the time he spent with his horse. (Just teasing) He's going to church with Angel and Aaron tomorrow and then he's heading back up here.
Sunday evening Danny is coming up here to watch the Cowboys game with Will. That will be a lot better play-by-play for Will. So Go Dallas!!
We still need prayers for Tanya and her recovery. Thanks
Have a great Sunday and God bless.
Friday, September 19, 2008
Coach and Donna came up tonight. They had a great visit. Donna even rubbed Will's feet. This of course made Will's day even better. I am very glad to be back here and I am looking forward to spending some days with Will. Like I have said before, it is so wonderful to be back to teaching; however, it is hard to be away from Will.
Tom is back in Hagerman and sounds so happy. It will be great for him to see all his friends and of course to be back with his favorite neighbor (sorry Coach . . . it's Kim not you)
Hope everyone has a wonderful weekend. I look forward to tomorrows blog when I can bring some good news. God bless you all and thank you again for all of the wonderful prayers and emails. Our family is so blessed to have such wonderful people in our lives.
Friday and Saturday are his dialysis days but I'm not expecting that great of a walk. On Sunday though he's walking as far as today and then one more step. Coach will be coming down Friday after school and then going right back after the visit. That's just crazy but it's so nice of him. Will's got such good friends.
I didn't get a report on Tanya today so I assume it's all good. I will let you know tomorrow night when I blog. I think Tom will be leaving around the same time as I am so we will be passing on the freeway somewhere. We'll wave to each other if we can. Tom is really excited about coming home and seeing his friends and brothers.
They are doing the brain MRI as I type this. They took him down just right before midnight. Don't you just love hospital time? Tom and Will waited all day and then waited all night. They are giving Will a lot of medication to relax him so they can do the MRI this time. Hopefully there won't be any vomiting. We should know something about the test tomorrow.
I will be blogging from the hospital room tomorrow night. I should have lots to say (well, when don't I?).
Thursday, September 18, 2008
Will had dialysis today and they got three liters off. He's able to breathe easier and he should be getting close to his dry weight again. Tomorrow will be a good day for walking and staying off the vent. Maybe Tom and Will can get outside for a while.
Sarah, our friend that had the lung transplant a few months before Will, came up to see Tanya, our friend that just had hers two days ago. (I hope I'm not confusing anyone) Sarah was able to report to Will that Tanya is doing fine and might get off the vent tomorrow. Praise God. Sarah stayed and visited Will for quite awhile and Tom was able to go and take a long walk. Sarah will be coming back to SLC this weekend which is good and then I can see her too. I haven't seen her in a long time. Can't wait to see Tanya also.
Dr. Cahill came in and saw Will tonight with Tania and Kelly. She was pleased with how he's looking. He's not so "puffy" (medical term). Maybe things will start moving forward soon. Coach is coming down on Friday to see Will and Will needs to see him too.
Please, please, please continue to keep Tanya in your prayers. We know how rough recovery can be, but she's a tough little thing. She'll be just fine. Still....it makes me nervous and then I read this passage in the Bible tonight:
Do not be anxious about anything, but in everything,
by prayer and petition with thanksgiving,
present your requests to God.
So not to worry, Tanya will be running around in no time. I will keep everyone posted. A friend of mine emailed me and told me how close she felt to these other two transplanted CFers just because of Will. That's really nice to hear. I really do too.
God bless and keep all of you safe.
Wednesday, September 17, 2008
Will's day went great. He had Shannon still here visiting and then Danny, their cousin, came over to visit in the morning. I really prayed hard for the nurses that had to put up with the three of them together in one room. I'm sure the nurses went home today and said there are just some days they don't pay us enough (and they're right). When we have family gatherings, we don't let those three stay together. Well, last I heard the hospital is still standing--so good news. Will had a great time with them and they kept him laughing most the time. They're goofballs.
Will had a good, good day. He walked and Tom got him to walk farther than he did with me this weekend. It must be some kind of competition. Well, all I can say is "bring it on" LOL
Will and his visitors took him outside for a ride but it was too hot to stay out long. He stayed awake most of the day and had a great time visiting until Shannon and Tia had to leave.
Tom's sister made him some stew and homemade bread and brought it up with her. He was a very happy camper. We need to be out of our apartment by the end of this month so Shannon helped Tom load some stuff up in his truck and Tom is going to come home to Idaho while I am up there this weekend.
Will was due to have a MRI done on his head because of the terrible motion sickness that he experiences every time he tries to move. They took him down to the MRI place and he couldn't quit throwing up long enough to get the MRI done. Now what?? They need that done so they can see why he's throwing up but they can't do it because he's throwing up. Why does Will have to make everything so difficult? So we will see what the doctors say tomorrow about it. He was off the vent the whole day. Tomorrow is dialysis day.
Tanya, our Cf friend that had her transplant yesterday, is doing very well. She's awake and recognizes everyone. Her lungs are working well. We just couldn't be happier for her. I hope she's out of the hospital in a few weeks. I can't wait to see her and her family this weekend when I'm in SLC. She still needs lots of prayers for recovery. Thank you. I will put some pictures of her on here soon.
Thanks for all the prayers and the loyalty to Will and his recovery.
Tuesday, September 16, 2008
Our good friend Tanya got two beautiful lungs yesterday. She is doing fantastic and everything is looking great. Please keep her in your prayers for a full recovery. What a super day for her and her family. Also we need to say a prayer for the donor's family and thank them for the wonderful gift of life. Will couldn't stop grinning, he was very happy for her. Tom went down several times to visit with the family throughout the day.
Will had a good day. Shannon, his cousin came up and they had a good visit. Tom's sister was up to (that's Shannon's mom). Will had dialysis and they took 2 liters off. He's almost back to his dry weight. They watched the Dallas game last night and it was a good one with Dallas taking the win. Way to go Cowboys!!!
I need to finish getting ready for school. Have a great day
Monday, September 15, 2008
Shannon, Will's cousin, and Tia, Will's aunt, are coming up to see him on Monday and they will go home Tuesday afternoon. Many of you remember that Shannon and Will lived together while they were going to college. There's a lot about that time in Will's life that I don't really want to know about. I do know they had a great time though. Will is really looking forward to his visit.
Will got to sleep in a little this morning, I think it was almost 10:00 before they woke him up. Then he did his meds and got a treatment. For lunch he ate a little cream of wheat and it stayed down for a while, which is good. It just didn't come right back up, well it did, but not until later. So that's good. Then he walked and for those that have been following his "steps" in his walking, this was a new record. He walked 164 steps. It was easier for him because in the last three days he has dropped 13 pounds in his weight. His feet are still swollen but they don't hurt as much.
We took him outside again today. That is really good for him. His motion sickness gets to him but he still will try to go out. Perseverance. The day in SLC was beautiful. It was in the low 80's and nice and breezy so as long as I kept Will in the shade he was happy, but eventually his O2 tank runs out and we have to go back. We had a good visit and he got caught up with his messages. He's looking forward to the Cowboys game on Monday Night Football. Go Cowboys.
God has blessed us with so much. Sometimes it's good just to have a few minutes to reflect on His goodness. I pray all of you can take a few minutes, look around and just see how good our God is. I was driving home and I just knew He put that in my heart to comfort me as I'm leaving Will again. Will is getting such good care from all the nurses up there and also his wonderful dad is there to help him. He's fine, Tom's fine, we all are just fine. Our thanks goes out to everybody that cares for us and mostly for all the continued prayers for Will's recovery. We'll be home soon.
God is awesome and I pray that He will bless all of you.
Saturday, September 13, 2008
We played some dice game and just read some of his wonderful messages. Some of them made him laugh. It was a good day. Dr. Cahill came up and visited a few minutes and brought us some tomatoes from her garden. Now tell me, how many drs do that???
Tomorrow there won't be any dialysis so we should be getting a better walk, although tonight's walk was very good. Will's good friend, Coach, is in New York City right now having just watched two New York Yankee games. He called Will and told him that he's having a great time. Wow, all the way to New York City just to see a ball game, but he sounded like he was in heaven.
Sunday will be a good day for us and I pray that it will be for all of you too.
He didn't walk or get off the vent today. He will tomorrow though. He said maybe we could get outside again for a walk in the sun. It should be a pretty day here. We caught up on what's been going on this week. Angel called him from Boise and she filled him in with what's happening there.
Dr. Cahill came in and said that nothing showed up in those cultures and biopsies they did on Monday. That's good but it would have been nice to find something that's causing all of this. So back to the drawing board. I was doing some trach care (cleaning it up) and I accidentally hit him with my elbow (I know, I don't know how I did that either). He asked if it was too late to call Grandma to come back. I think he was teasing (maybe??). I didn't get his messages read to him yet but we have all day to do that.
I hope everyone has a great weekend. Have fun and laugh a lot. God is good.
Thursday, September 11, 2008
Will got up and walked today to the double doors. He was throwing up a lot so he couldn't go any farther. That was a good walk. Today, Friday, they want to try to get another four to five liters of fluid off when they do dialysis. His feet are still so swollen that when he steps of them, they hurt. With the other four liters off, that should help his feet so much.
Dr. Cahill put Will on a different drug to help his stomach troubles. This is the same drug that they use for Aids patients. She is just going to start him off on a low, low dose and see what it does. Hopefully we will see some results.
Angel and Aaron are headed to Boise this weekend to be with Aaron's daughter. They stay at Aaron's mom's house and they can take their dog, Duke, also. They will have a great weekend together.
So tomorrow night I will be posting from the hospital. I hope he looks better than he did last Friday when I got there. We will try to get him outside again this weekend if the weather cooperates. Maybe I can get some new pictures up also. I hope all of you have made great plans with your families or friends. Stay safe.
Okay, back to Will. He had dialysis and they were able to take off FIVE liters. Yup, that's right-5. That's 11 pounds of fluid and there's still more to go. That was very hard on the body so he has slept the day away, which is just fine. Tomorrow he will get up and take a walk I'm sure. It must feel very good to just wake up one day and be 11 pounds lighter. Where can I get a machine like that??? Grandma and Grandpa Atwood are still up there helping out. They are keeping Will entertained and great feet rubs.
We have been getting such great emails for Will. I can't wait to share them with him when I get up there on Friday. Thanks so much (again).
We love you all and God bless
and God bless America
Wednesday, September 10, 2008
Will did walk today just past the double doors. He slept a lot because of the procedure but he stayed off the vent for most of the day. That's so good. When I talked to him tonight, Grandma Cherie had been rubbing his feet for most of the night. I call him and then they put him on speaker so he can hear me and then Tom or Grandma can read his lips and he can answer my questions. Grandma and Grandpa got there this afternoon and they will stay for a few days to entertain Will. If you people know my dad, he's pretty entertaining, even when he's not trying.
Many of you have been sending me emails to forward on to Will. I really, really appreciate them. He could use them right about now and it's very sweet of you all to do that for him. It will help lift his spirits. Some are very funny stories which he will appreciate. God has blessed Will with so many good people in his life. Your acts of kindness for our family is wonderful. Remember if you don't want to put them on the blog, you can send them to my email at firstname.lastname@example.org
God bless all of you and smile today. It's a wonderful day to be alive.
Tuesday, September 9, 2008
God has given us so many blessings already. He has His plan for Will. I pray and pray that it's bringing him closer to the time that he gets to come home to all the people that love him.
So the test were done today, the endoscopy and the colonoscopy. It was not fun to prep for this procedure. We were up all night "cleaning" out everything there was in Will. We don't have any answers yet because they took cultures and biopsies of different areas that they found some concern with. It takes a few days to get any results. The doctor that did the procedure forgot to come in and talk to Tom and me. When we asked to see him they told us he was already doing another procedure and he will come up and talk to us afterward. Well, he didn't show. So we have more questions than answers right now.
That brings me to a funny story, well maybe not funny, but it tells you where Will's head is right now. I was getting ready to leave and I told Will to try to keep a positive attitude this week. He told me he's positive that nothing will get done. No, that's not the funny part, in fact that's sad to hear from him. Anyway, I told him that I had been praying harder the last few days and that might be what he needs to be doing. He asked if he could pray for the doctors to show up when they say they would--this is his sarcastic voice here. I said God could do anything---thinking I am very wise and giving him such food for thought. He said he doubts the doctors probably would even show up if God told them to. They probably have another meeting first. Okay so it wasn't that funny but I like it when Will starts having a little spirit. He's been just getting more disheartened these last weeks. We were so close to being out of there, it's hard for him to see the progress slipping backwards. ALL in God's perfect timing. That seems to be my mantra this last month. ALL in God's perfect timing.
He had his dialysis within minutes of getting back to the room after the procedure. They took 3 more liters off during the four hour procedure. He slept most of the day away which was what was expected. Yesterday because of all the goings on, Will stayed off the vent for 15 hours--new record. I hear your cheers right now, and I will pass them on to Will. Tom will be waiting to hear from the doctors and I will let you know what they say. Grandma and Grandpa Atwood are coming up today and spending a few days with Will to help out. That's good because Grandma Cherie loves to rub Will's feet. Good times ahead for Will. We will continue to hope and pray that Will's health will improve.
I will praise You forever for what You have done;
in Your name I will hope, for Your name is good.
I will praise You in the presence of Your saints.
Sunday, September 7, 2008
He had a better day on Sunday. He visited with Angel all morning and they played cards. We got him some that are for visually challenged. He can see them if he holds them just right. It was great to watch him play a game. We took him outside just for a few minutes because he wasn't feeling well. Angel and Will were teasing each other and it was so good to see. That's the old Will.
Then Danny came up and watched the first Dallas Cowboys game with Will. For some reason, Danny's play by play is so much better than mine. ???? Cowboys won---GO DALLAS
Then they played a game of cribbage. Will used to play that all the time. He really enjoyed that even though Danny won. It's been a long time since Will has had to use his brain like that. So all the company really helped get his attitude adjusted. I hope he holds on to that through the week coming up.
It depends on what the drs. find out with the procedures, but I should be going back to Hagerman tomorrow night. Grandma Cherie is coming up on Tuesday for a few days to help out again. That will be so good.
Today please we need prayers that some of the questions that need answered about Will's stomach problems will be answered. We have faith in God's timing so I pray that God is ready to help the doctors get something going here. I will tell everyone how the tests went. The drs. said that after he will sleep most of the day away. He also has dialysis today.
Take care everyone and God bless.
He walked a little tonight and then we put him in a wheelchair and went for a walk outside. It was a beautiful evening, with a nice little breeze blowing. He was off the vent for about four hours today.
A good friend of Will's got married tonight. Congratulation Camille and Cody, we sure wish we could have been there.
Tom didn't come up today because he's not feeling too well today. He stayed at the apartment and slept. He is already feeling a little better. Maybe just a little cold. He'll stay away from Will until he feels better for sure.
I will be getting this blog up on time but I wanted to thank our "hot" secretary for filling in for us this morning. She's also feeding our animals back home. Thanks "hot" secretary.
No dialysis on Sunday and maybe we can get him on a bigger walk today.
God bless and enjoy your wonderful Sunday.
Saturday, September 6, 2008
I got up to the hospital about 8:00 last night. Angel and Aaron got up there just a few minutes before I did so Will was up talking to them when I walked in. I could tell by his face that he was hurting, and he really has gotten more swollen than when I left him Monday night. So what's up with all that????? His stomach problem is a little worse and he's just tired of it all. So it's a good thing that Aaron and Angel are here. They will get his spirits up for sure. He hasn't walked in about four days. We are going to try to get him off the vent sometime today. I will remember to blog tonight before I go back to the apartment for sure.
Right now, Will and Angel are playing a game of war. Aaron is checking and making sure that Angel doesn't cheat so rest assured he's got Will's back. Aaron went back to school this semester and he's doing his homework up here too. He's just so smart.
The Hot Secretary!
Friday, September 5, 2008
Tomorrow he will do dialysis again and the doctors think they might have a way of cooling the blood during dialysis and not having Will freeze for four hours. I am not quite sure how they are going to do it but Tom said he will have them explain everything as they go. Then I will let you all know. It's amazing how they can change things like that. I just hope that they can get some of the fluid off. He will probably feel so much better if he did.
His stomach is still the same and he's still vomiting whenever he moves too much. I don't know how Will even wants to get up and walk. Well, I will be going up there just as soon as school is out. Angel and Aaron are coming up also so Will will have some new company to visit with. Coach can't come down this weekend because he's going up to Seattle (I think) to watch those silly Yankees. Why is he even wasting his money, especially this year??? Will's been enjoying listening to the Mets' game on the radio. They play almost everyday.
I will let everyone know what's going on first hand when I get up there. I don't know why Tom won't write the blog since he is actually seeing what's going on. Hmm... maybe if I paid him....
God bless and TGIF
Thursday, September 4, 2008
Will's day just wasn't a good one yesterday. He didn't feel well all day and he just didn't get off the vent or get up to walk. He did have dialysis and they tried something new. They wanted to get some fluid off this time because he's starting to swell up again so they tried cooling the blood as it goes back into the body. They were hoping that would keep his blood pressure from dropping so low. It worked sort of and he got about 2 liters off. He had to be wrapped with warm blankets for the four hours that he had dialysis. It wasn't the most comfortable he's been.
Today is his off day so hopefully he will feel like getting up out of bed and walking.
Wednesday, September 3, 2008
Dr. Cahill came in and she had taken the weekend off so she didn't know any of the stuff that went on. She is going to do some tests on Will tonight and tomorrow and "get to the bottom of it"
Those are her words so it will be done.
This is a little set back but I was so happy that he walked. Coach said I start all this stuff with Will on the weekend and then poor Dr. Tom has to get everything fixed up. He's real funny like that. I know this week Will will be so much better.
Our prayers worked again because Hurrican Gustav wasn't as bad as predicted. Thank you, God. Those poor people in Lousiana didn't need any more trouble. They are still reeling from Hurrican Katrina, three years ago. At least there are homes to go home to this time.
Tuesday, September 2, 2008
I know this sounds like I'm frustrated---well, I am. He just starts doing better and then something has to happen to set him back again. And if I think I'm frustrated, I can't even imagine what Will's feeling. He was pretty much growling at everybody today. Thank goodness everyone understands where he's coming from. Tom stayed with him until after midnight to make sure he's doing better and able to control the pain somewhat.
They did do a four hour dialysis early this morning but they couldn't take any fluids off because of his blood pressure. The kidney doctors hope that when this last episode of the allergic reaction is out of his body, then the blood pressure will be stronger and he can start getting some fluids off again.
I want to again thank God that the people that are taking care of Will are so caring. The nursing staff is unbelievably compassionate and try to do everything in their power to help Will get his positive attitude back. I hope God heaps His blessings on them all. I can never thank them enough-not just one or two but all of them that have been taking care of him the last six months.
We haven't seen much of Dr. Cahill lately so maybe if she comes in today things will start happening. I know we will have better news this evening. Please say extra prayers for attitude adjustments that we need :). We DO feel God's loving hand in all of this-look how far He's got Will already. (okay, my venting is done now). Hope you all had a great three day weekend, now it's back to work.
Monday, September 1, 2008
Will's day was not as good as we wanted it to be. He had a allergic reaction to the medicine they have been giving him for the stomach trouble. We thought it was starting to work, too. Oh well, back to the drawing board. Since he didn't get any sleep last night because of the itching and then this morning he was having such trouble breathing that he couldn't get off the vent, he didn't do any walking. After they had to give him steroids and iv benedryl he started breathing okay. He slept for about four hours without moving a muscle. That takes a lot out of a person. His heart was really working overtime. Everything is back to normal tonight.
Hopefully we can get a walk in this morning before dialysis starts. I will have to leave around five tonight. It will be hard again to drive back. I am praying that it won't be for much longer. He needs to get back to Idaho before Utah starts putting him on the jury duty list.
There was a terrible storm tonight and the thunder just rattled Will's hospital window. I thought it was going to break. Will didn't let me jump in his bed with him though. I told him I was a little afraid he told me to get over it. He's so caring and compassionate.
Please keep the people in your prayers that are experiencing the terrible hurricane effects. I will also. This is still a holiday so I hope everyone gets one more good day of play time before summer is over for good.
Thanks to all of Will's faithful readers. God bless