Saturday, February 28, 2009
Last year was crazy but something good happened also. Angel and Aaron got married on leap day (Feb. 29) so I asked them when they were going to celebrate their anniversary. They decided it was going to be on March 1st. So on Sunday they will celebrate their first year anniversary. They sure love their new house and Aaron's mom and Steve are visiting from Boise. They brought up Candace so everything worked well.
Coach is going to take Will to dialysis Saturday. They enjoy that time so they can talk about everything, everything really means basketball. Have a great weekend.
Friday, February 27, 2009
Will had dialysis again today and he could only get a liter off. His blood pressure has been going down too low again. We started backing off of the med that was keeping it higher because we thought he was doing better with that. Whoops. so we will get him back up there again.
Will wanted to go watch one of the Jerome Boys' games so we watched them take #1 spot--just like the girls. They will go to state in a couple of weeks. Good luck to them. We probably won't go up to watch them though.
Our friend, Aunt Sharron is doing so really well from surgery. If you want to go check out what's happening with her, just click on my friends' Whitehouse blog on the right of our home page. She still needs so many prayers for healing.
Will will have physical therapy tomorrow and his nurse will come out and check him out. Hope everyone is planning a great weekend. Sat. is supposed to be nice (please).
Thursday, February 26, 2009
Wednesday, February 25, 2009
We went out to dinner to celebrate Will's one year anniversary of his lungs. Will told Brent (Brent and Stacee went with us) that he's one year old today. That's a great way to look at it. Most newly arrived infants have to learn things in the first year and that's what Will has had to do with his new lungs and the body that he has to build back up. I told myself that I need to put the pictures of the new and old lungs on the blog so people can see what they looked like now that it's been over a year.
I wanted to give you a site that many of you can go on to and read about becoming a donor. I hope that all our readers have told their families if they have chosen to become donors, but if there are still people out there that haven't made up your mind, maybe this site will help.
I asked Will if he was sorry that he chose to have a transplant and he told me he has never regretted it for a minute. Even after all he's been through. I told him that the first 3-6 months he was on the "amnesia" medicine so he couldn't know what all went on. I still thank God that he can't remember lots of the "issues" that he has had.
My mom is feeling so much better tonight, she had a touch of a virus thing. My uncle's surgery went well and he's on the road to recovery. Coach has had an ear infection for a few days now so he wasn't up to going to dinner with us, men can be such babies, can't they ladies?? Pam and Lynette, what do you think?
And the big news---drum roll please----Angel is starting to get a little "tummy" on her. Oh, happy day!!!!!!!
Look at all our blessing that we have going on. We have to be the luckiest family in the world.
Tuesday, February 24, 2009
Now, if any of you want to take a trip back in time, go back to this time last year on this blog and see how Will started this whole journey. You have to keep going all the way down the page until the bottom and then hit "older posts." Last year at this time we were sitting in a large waiting room with family and friends and we were so excited about Will's new lungs. So today I went back and read some of the entries from that time. I couldn't quite get through them but I will someday soon. We hope to have a first year anniversary party sometime this spring, like a big open house, and everybody's invited. What a fun time that will be.
Now on a sadder not, I am praying tonight very hard (and I ask you to say a prayer also) because this is the first year anniversary of the death of some one's loved one whose special gift of life saved Will's. It has to be so hard on that family and my heart goes out to them. I hope someday to be able to put into words all the special feelings we have for this family. We were told that we have to wait for a year before we can send the donor's family a letter. The transplant team then gives it to them. Then it is up to the family if they want any contact at all. I hope someday (not now though) that they will want to meet Will.
Will has gotten sick this afternoon and we don't know what's going on. We will see if it gets better after dialysis tomorrow or we'll call the doctor to see what's what.
My Uncle Bill is having surgery Tuesday. So we need prayers for him, please.
All in all, a wonderful day to celebrate Will's life. God made a great person when he designed Will. Thank you God for allowing us to be part of this special life.
GOD BLESS and again thank you, thank you, and thank you for staying with us through all this.
Monday, February 23, 2009
This is us trying to get the timing thing working on my camera, delayed button or something. It was hilarious everyone trying to get ready for a good shot and never knowing when it's taking a picture.
Sunday, February 22, 2009
Will finally was able to go down to look at Angel's house. He thought it was a great house for them. They really do have it fixed up so cute. Maybe we can get some pictures on the blog so you all can see.
Have a fantastic Sunday, I know we will and I will let Will sleep in for a few extra hours.
Saturday, February 21, 2009
Here's the girls in their huddle right before the second half. It was a really good crowd from Jerome. I was glad to see that.
Oh, the girls lost a heart breaker. 43-42. Just broke our hearts to see the girls so sad. They are a great bunch.
So we are back home now and will watch as much of the games as we can on the Internet at Idahosports.com if any of you all are interested in watching.
We had a great surprise. We went to the hospital in Boise where we spent so much time. We wanted to see if any of our old friends were working. Well, we came just as they were having their giant open house. So we got to see everyone. But, dummy me, I forgot my camera so if any of you that took pictures there could send me a copy, I will get it up on the blog. That would be a great picture. It was really great and they had a live musical group which they stopped playing to announce that Will was in the "house." They even made him say a few words. Any of you that know Will probably can understand that he wasn't too thrilled. Oh well, we did get to say thanks to a lot of people. It was great to hug everyone.
Will was very tired when he got home tonight but it is a good tired. We got to go to dinner with Curtis and Jen and Cali. We spent some good time with my dad and Cherie at their house waiting for the game.
We go to dialysis at 7 this morning. YUCK! but we did that in case the girls went on to the championship game and we wouldn't have wanted to miss that. Oh, great, it's after 2 in the morning and I have to get up in four hours. I better hit the sack.
Friday, February 20, 2009
Jerome won the game and they play tomorrow night at 8 and then we will go home. WAY TO GO JEROME!!! We will probably spend the day visiting with family around town. We really want to get over to our "old" hospital and say a big "hello" to all of them.
I will try to write more tomorrow night after we get back home.
Thursday, February 19, 2009
Wednesday, February 18, 2009
Angel and Aaron are almost all the way moved out. They have stayed in their own house the last two nights. They are so excited to have their own things around them. This will be a positive move for them both.
They got off more than 4 liters. So he was pretty sore tonight but he will feel better tomorrow. He will have physical therapy in the morning.
Tuesday, February 17, 2009
Here are some cute pictures of Bella Rose (and our Bella, the cat, is on Will's leg again) meeting Will for the first time. I don't know what I was thinking but I didn't get any pictures with Katie, Bella's mom. She's supposed to come back this week and then I will get another chance. Will had a really good visit, even though Mondays are not his good days.
He slept late today and then he had a haircut. That made him feel so much better. We are looking forward to watching the girls up at state this week. So we are back to work tomorrow. Hope everyone has a great week.
Some time on Tuesday we should hit a very, very, very big number on the blog. If you are the one that makes the counter go to 100,000 let us know. You won't win anything but you will get an "honorable mention" on this blog.
Monday, February 16, 2009
I have been helping Angel and Aaron get their new house ready to move in to. They found a house in Hagerman to rent and they will be moving by the end of the month. This weekend we have had Candace, Aaron's daughter. She is so fun to have around.
Sunday, February 15, 2009
I forgot to tell you all (what with the wonderful news I was able to share yesterday) that the nurse that has been working with Will told him that he's so ahead of where he should be in the road to recovery. What Allen (the nurse) said was that usually someone who has been in bed for over 10 months usually takes that long (10 months) to come back. Allen said that Will is about where you would expect him to be at about 8 months after getting out of the hospital (it's been six weeks). Will just keeps amazing us all, over and over.
We had such crazy weather today. It was snowing and blowing with the sun shining. I don't know what it was trying to do but I'm glad it's past.
GOD BLESS AND HAVE A GREAT SUNDAY. I know we will be saying extra prayers for all the special blessings that have come our way.
Saturday, February 14, 2009
Below is an ultrasound picture. This baby already looks beautiful and smart, don't you think???? Well, people, this might be the baby of all babies.
The little one is only about an inch long here, isn't that amazing!!
Oh, by the way, Will had a good day. Can I just say how happy this baby is making all of us.
Have a great Valentine's Day. Remember, if you can't be with your loved ones, you're not alone, the One that loves you the most is always with you.
Friday, February 13, 2009
They played great and they beat Century (from Pocatello) by about 30 points.
So they play next Thursday in Boise at 6:00 or so. Will has already changed his dialysis time to the morning, at 7:45 am! I didn't even know Will knew there was a 7:45 in the morning. That's dedication to this team, for sure. That way he can get dialysis done and then go up to Boise, watch the game, spend the night, and watch Friday's game also. We will come home on Friday. Then, because we believe the girls will go all the way, Will is having early dialysis on Saturday also so he can go up in the afternoon and watch the championship game in the afternoon.
Will did so much better at the game tonight. His breathing is so much better. The girls all come up and told him thanks for coming. We saw some really good friends of ours-the Kelseys and I mean almost all of them. What fun catching up, they live too far away for us to get together often. Good times tonight.
Thursday, February 12, 2009
Will had a good workout with his physical therapist. They have him walking mostly for endurance. Then after that he went outside and walked around the house once. The sun was out but it was cold.
Coach came over for a visit and they talked about all the upcoming games. Tonight we are going to Jerome to watch them play for placement at state. Will is going to try to figure out dialysis days so he can make it up to state to watch the girls. It's in Boise.
Have a good Thursday
Wednesday, February 11, 2009
Will had dialysis and he was needing it again badly, just like every Tuesday. They took off four liters and he should be feeling good tomorrow. Right now he's just tired and cranky.
He is still recuperating from the busy, busy day we had yesterday.
So have a great Wednesday and God bless.
Tuesday, February 10, 2009
Today was a good day. We spent the whole day on the eyes. We first went to Dr. Hansen and we really liked him. He has such good things to suggest and I think we did them all. Grandma and Grandpa Atwood met us there so they could hear what the good doc says. We got Will a pair of eye glasses. The reason being that before he lost his vision he had to wear glasses. So then what sight he has left in the right eye will need glasses. Which does make sense. This will help see more clearly. Then the monocular glasses that we ordered today will have the prescription in it also and that should let him see things farther away more clearly.
Now that I have totally confused you, let's just say his vision will improve with these glasses. We went to a one hour place and had the glasses before we left Boise. That turned out to be a good thing because he couldn't have the loan of the glasses he has been wearing because there are people that have been waiting for those for a while now. They usually loan them out for a few weeks, we have had them for three months now. That Will, he's a little con artist you know.
So he's now going to be wearing normal glasses and then he will have his binocular type glasses by the end of the month. We also got a contraption that will let Will read, do crosswords and just about anything else. It's like a projector that will put the image up on a screen and then Will can magnify up to as much as he needs. I will take a picture of it and explain how it works when we get it up and working. That's going to open up so many doors. I can't wait to see how it all is going to work. So it was a good day in Boise.
But it got better. We had to dash (seriously hurry) to make it back to Jerome in time for the big game. We did it just in time and Will sat behind the bench. That was fun because he could hear everything that was being said. So, back to the game. Jerome won!!!! and they are going to state!!!! It was a big night. Then when the team had to go out to the center of the floor to receive their trophy for winning their conference--they wanted Will to go out with them. So the pictures below are of that event. That was soooooooo sweet of those girls. Thank you, ladies.
Monday, February 9, 2009
Mom was able to go back to her home today. Praise the Lord that she is still able to live like she wants to. So many people don't get that option, and I know she's happy to be back in her cute house. She's doing so much better. Thank you all for the prayers for her recovery.
Tomorrow, or today, whichever way you look at it (Monday) we get to take Will to the vision specialist in Boise--finally. I know there will be things that he will be able to buy to help him use the vision he has left the best way possible. This doctor will be able to tell us that. Also maybe he can give Will a pair of glasses that will be like those binoculars that he wears to watch TV.
So we go to Boise then we hurry home because Will wants to go to the BIG game for his girls tonight at 7:00. They play for state tonight so good luck Lady Tigers. We are hoping that we can stop by our nice hospital in Boise for a quick chat with all our friends there. Remember, they haven't ever gotten to hear Will's voice the whole time we stayed with them.
Tomorrow I will let you know all the ideas we have gotten from this doctor. He should be able to let us know what computer Will can get because there are a lot out there that reads the screen for you. We just don't know which kind to get. Will's excited about all this, as you can imagine.
Please pray for our trip and that the doctor has some great ideas.
Sunday, February 8, 2009
Now for my news---I got a surprise from my good friend Donna Clark. She invited me to the opening ceremonies of the World Special Olympics Winter Games in Boise, Idaho. It was the best time watching all the people. They are sooooo full of just love of life. They humbled me.
We should all volunteer some time to this wonderful cause.
I can't get over the fact that they are all so happy all the time.
Saturday, February 7, 2009
He walked all the way down to the mailbox and back. Here is Kevin checking the O2.
Now this is what I miss by going back to the work. I wasn't here for this great day but Tom got all the pictures that showed what a great day this is.
Friday, February 6, 2009
Here's a couple of pictures that are going to go in the album. Will and Coach had the game (the Lakers and the Celtics in the background) and they got a gift from us in their hands-their own cups. So the game was a perfect time to give it to them. I think they were both happy.
Thursday, February 5, 2009
So, sorry that I didn't get to blog last night.
WHAT A TRIP
Here is a great crew: Dr. Liou, the CF specialist that has been Will"s dr. for years. Then, of course our own Dr. Cahill. Her "boy" and Kelly a transplant coordinator and Tauna another coordinator. It was sooooo good to see everyone and have everyone see Will. They were very, very, very impressed with how well Will is progressing.
Then three of the intensive care docs that took care of Will for those many months got to see Will. They all just couldn't believe how well Will looked.
So now that I told you all who Will got to see, I will fill you in on the news from Dr. Cahill.
We got there at 8:00 in the morning and went for the blood tests. Then we went to the vascular surgeon who put in the graft for dialysis. He took out the stitches and told Will he could start using the graft tomorrow. That's great news because after using it for about a week they will take our the tunnel catheter in his chest. That's the one he's been using all this time. So hopefully that will go good tomorrow.
After that we went to Dr. Cahill's clinic. That was about 11:00 then. She came in and checked him over, then I think she came back four more times just to say "Will, you look so good"
She's pretty proud of the job well done. We got to get Will off from two more meds that Dr. Cahill says he doesn't need. Anytime we can get one more pill finished is an achievement in itself. The bloodwork and the xrays looked real good. Then we talked for about one hour with the dietitian and she helped a lot. She gave us a lot of paper work to read about all three diets that Will needs. I was really glad we came just for that reason alone.
We didn't leave the clinic until 3:30 so it made for a very, very long day for Will. He's exhausted tonight. We did stop and have lunch/dinner with Danny and AnnMarie. That was so much fun. Tomorrow is dialysis day so we can see if he can use his graft, pray for that, please.
All in all, the trip was short but sweet and we want to thank God for getting us there and back safely. Thanks for all the travelling prayers.
I'm sure there are a few more things that I didn't get in about, but as I remember I will write them down.
Tuesday, February 3, 2009
Speaking of appts. we had a very nice one with our new primary doctor for the area. Dr. Cahill will be (always) Will's number one doc. This doctor was recommended to us and we need one for the area just in case something comes up quickly. Dr. Laucius is an internist and she looked quite frantic when she came into our room. She wanted to know why we asked for her. So we told her we asked around and she had the best reputation. She was willing to work with us and Dr. Cahill. That's hard to find a doc like that. We probably won't have to use her too often but it will be nice to have one in the area in case Will needs blood work and things like that.
So we are off on a very quick trip to Utah. I hope this isn't going to be too hard on Will. The weather will be okay so at least we don't have to worry about snow. It will be nice to see all our friends again. I hope the CF transplants, Sarah and Tanya will be at the clinic too. I would love to see them again.
Well, pray for our trip please and God bless. I should be able to blog tomorrow night hopefully. If not, we will be back on Wednesday.
Monday, February 2, 2009
Sunday, February 1, 2009
He was resting most of the evening, getting ready for the big game tomorrow. Will doesn't really care who wins, since Dallas isn't going to be there. We hope everyone has a fun-filled Super Bowl Day.
Angel and Aaron should be back from Boise Sunday afternoon and then I think they will go to some friends' house to watch the game.
Go Super Bowl! (How's that for straddling the fence?)