Ok, so sometimes we don't get everything we want. After all that bragging on the beautiful room with windows, we aren't going to be able to stay. In the last 24 hours Will hasn't been doing as well as they wanted him to be. So we are going to have to go back to ICU. This ICU is one that we haven't been to yet. It's called intermediate intensive care. It's for those that need more nursing care than floor care, but not one-on-one nursing.
I know that some of you are upset that this is a major setback, but it isn't really a big deal. It just is a little bump in the road.
God said, "Not yet"
Remember how I said in an old blog-- God answers all prayers three ways:
2) Not Yet
3) I have something better in mind
So this is the "not yet." Will just wasn't ready for this floor. So we must be needing to go to the new floor for a very important reason. Every time a little bump in the road happens, we all get to experience God's love and mercy. His path for Will is, and has been, an amazing journey filled with God's love and miracles. What a testimony of the power of prayers also. I guess what I'm trying to do is to make all of you feel better, because I know you will be bummed about this. Don't be. We're not. Will won't let us. Besides I did all my dancing in this nice room yesterday so I don't need this big of room after all that. We will get back here real soon, I know.
Here's what has been happening. he's gained over 14 pounds of fluid in the last 24 hours. He has definitely gotten much weaker (he can no longer stand up) and he's needing more oxygen. I wish I had some answers as to why this keeps happening, but the drs. are scratching their heads also. He has been having a hard time staying awake for any length of time. Even last night when his cousin, Danny, came down to watch the game with him, he fell asleep before the overtime. He wasn't too happy about that because he knows he lost the chance to see one of the better games in a long time.
We were supposed to move over to our new home this afternoon (Tuesday) but there wasn't any rooms available. So we should be moving this morning, maybe. I will let you know when it happens. We got some beautiful flowers today from our home church to brighten up our new room. Thank you everybody. We won't be able to take them back to ICU but we will make sure someone here gets to enjoy them.
Our friend Tanya gets to go home from the hospital today. She is the other Cf person that needs to have a lung transplant. We have been praying for her everyday. It will happen soon, Tanya, hang in there.
My sweet Aunt Charlotte has finally been released from all her pain and suffering. My mom was able to be with her till the end and I appreciate all the prayers. There was a great sigh of relief when it was over. No one wanted her to suffer anymore. Her husband and son were with her also. God has a new loving angel with him now.
God is still working with Will and working with all of you that are praying so hard for us. He is an amazing God with great plans for Will. All the glory goes to Him.
I will update today sometime. God bless