We have a good friend named Somer Love who has CF also. She raises awareness for CF research wherever she goes. On her blog today was a notice about trying to get next month as National Cystic Fibrosis Awareness Month.
Help me fight cystic fibrosis by asking your Member of Congress to recognize May 2008 as National Cystic Fibrosis Awareness Month. Check out this website at the Cystic Fibrosis Foundation to see how you can help. Get involved click here; http://capwiz.com/cff/issues/alert/?alertid=11220821&type=CO It gives you a way to contact your representative. My nephew, Randy, told me today how to get links on these things. I hope I did it right.
Will had to go back on more lasiks (sp???) today because his lungs are filled with fluid. That's the medicine that takes fluid off. I know it seems like we keep going over the same ground over and over again. But it is getting a little better. Will's pain is lessening and when we get this fluid off, we should then be able to concentrate on the vent coming out. Hopefully. He tried to sit up today but it didn't go too well. So we will try tomorrow. His tube feeds are now all the way up to where they should be so with enough nutrients, he should be getting stronger. Tom and I still exercise him several times a day so he doesn't get too stiff. Angel and Aaron will be up tonight, Friday, to spend the weekend with us. Then they can exercise him for a while.
I think his attitude has gotten a little better. It helps having those lines out of his legs and letting him move a little bit.
Thank you for the prayers and we will let you know how things are going. The doctors say his kidneys are doing better.