Ok people, sometimes I say I'm going to let you know more and then I don't. I apologize. But there is a reason. Earlier we didn't have much to write about because they were not coming in with anything new. Except they decided to hold Will's pain medication to a bare minimum. This is very hard for us to take because no one likes to see Will in pain especially Tom, Angel and I. The doctor has been in several times because he knows we are upset. But again we have to have faith in Will's care team.
This is how they explained it to us in a nut shell. If they give him pain meds he gets weaker, his breathing is compromised then he's not strong enough to get off the vent, then he's prone to a bad vent infection, then he gets worse, he spends more time in the ICU and less time at home. This has also affected his kidneys and liver to an extent. Now when they explain it like that I can understand, but when Will is saying he is in too much pain none of it makes sense. I think right now I just have a bad attitude. We can handle most things except seeing him in so much pain. They did decide to compromise and give him some to let him sleep tonight. Hopefully that will help him tomorrow. Right now he's sleeping very comfortably.
Now tomorrow they are going to put in a feeding tube into his belly. This is done surgically and it will help put nutrients where they belong. Most of the samples that they took out of his lungs a couple days ago during the bronch has shown tube feeds. So what that is saying is that Will has coughed so hard or gagged so hard that he brought this tube feed up into his lungs. It's called aspirate. So the main dr. thinks this could have caused the last lung distress that put him back on the vent. They decided to put this other feeding tube in because it will have a port that will drain anything out of his stomach so he can't do this again. This is a good thing. They did do an ultrasound of his liver and I don't have the results yet. I think the dr. was too afraid to come into Will's room. Angel gets kind of hot when Will is feeling so much pain. She kind of jumped the dr. but he is doing what is best for Will. A bit of pain right now is better than weeks still in the hospital. So again we need to make an attitude adjustment. Pray for us, please.
I will try to post tomorrow. I am sure tomorrow will be a better day because of the sleep Will is getting tonight. We don't have the time that they are going to do that procedure. They just come up when they can. I am going to find passages in the Bible that will help me. Many of you have sent me great passages and I'm sure they are what I need right now. I can find comfort in His word. I just have to ask Him and then I have to listen to what He tells me. He can heal all. God is that awesome!
Thank you all for caring, loving, and praying for Will and his family. We appreciate it so much.
Will's birthday is in 4 days. I need to start warming up my singing voice.