Will's holding his own. All last night he worked out and exercised (all he can really move is his arms, hands and feet) but he wanted to be ready to get off the vent. He tried all day but he couldn't get his numbers up. His body was still too tired to breathe without help. Still for the rest of the day he worked and still he couldn't get off the vent. So tonight he just rested, and he thinks maybe that will work.
He was angry at himself and I reminded him that he only had surgery the day before and that sets your body back. All he told me was that he had a goal for the day and he didn't reach it. So he was dissapointed. I told him to cut himself some slack. He just wants off that vent. He hates having to tell us stuff by writing it out on a pillow. And he's ready for another pepsi. It seems like a long time ago when he had that one last week. His blood gases (that's how they check to see if he's oxygenating his blood-I think that's how they say it) are not where they should be to get off the vent today either but I'm not going to tell him. I'll let the drs. be the bad guys. Who knows, he might be able to do it later today.
The drs. did another bronchioscope to check to make sure they didn't damage the lungs yesterday during sugery and all looks well. They are going to work just fine when we get all this other stuff figured out. His new feeding tube that they placed in his intenstines yesterday clogged up so they had to put another one in today. That's not a very comfortable procedure.
He is waking up more and wanting to have us read the comments. That's the first thing he asks us for. He loves hearing from all of you. Yesterday, Molly wrote to us. She's from his basketball team. He loved hearing from her. Hopefully the other girls will start leaving messages too.
Right now he went back to sleep and he's listening to relaxation music with birds and ocean waves. It's pretty hypnotic, I keep finding myself drifting off to sleep too. I also get very reflective. I am just amazed that God made my son into the man he is. I keep learning and growing because of what Will has taught me. Parents are supposed to teach their children. Not in this case, I have learned so much about strength, perserverence and the willingness to do what you have to do to achieve your goal. His goal is to breathe. Pretty simple for you and I but he sure has to go through a lot to get that happening. He has never gotten depressed or discouraged. Just ticked off because he had to go back on the vent for a while.
God says He goes before us and makes a path to follow. Will's path might not be the one that we want for him, but it's the path that God wants for him.
Someone sent me an email today and it was a good one, I'll share--
God only gives three answers to prayers:
2) not yet
3) I have something better in mind
How true is that. So keep sending prayers and see what answer we get. They are so powerful.
Hopefully I will be able to have some good news later. Will just told me he has a good, good feeling about today.