"It's all going to be worth it!" Will wrote that on his paper before he fell back to sleep. He wanted me to let everyone on the blog to know that. "Everything that's worth a lot usually takes a lot of work." He also said to share that. He seems to want to reasure his friends and family that he still feels positive even though he had this little set back.
He had a few tests today and the results should be back this morning. I know all of you that are reading this are asking the same questions as we have. Why does this keep happening with all the fluid built up?? The drs. all ask that too. They can't seem to figure it all out. But they do keep trying. He had a little "blip" (that's not really a medical term) with his kidneys. So they did a whole battery of tests on that today. They did order a another ultra sound of his arms and legs because the swelling hasn't really come down yet. They must have been busy because they didn't come up. I'm sure they will be here this morning. His blood pressure went down again today so they had to back off his sleep medicine. He wasn't happy about that. He does have pain medicine that he takes. He would just rather sleep his time away while he's on the vent.
They have gotten his O2 needs down. He's now on 70%. We are working his joints and muscles so he's not going to be too stiff when he can start moving again. So things are moving here in the right direction.
Randy, I know this will shock you but he asks me to talk to him when he wakes up. Seriously, I had a nurse verify it so you know it was the truth. I tell him things that you share with us and anything I see out in the hallway but I usually just tell him sports stuff that I read on the internet. Our niece is expecting her baby any day now, so Will asks about that every time his eyes open. We can't wait.
Today we will pray that the vent numbers will go down or take the vent all the way off. Why not pray for it?? It could happen. The swelling needs to come down and his lungs work at their full potential.
I forgot, the news story aired today. They did a ok job. I talked a lot more about being organ donor and the good care that we are receiving here at the "U" but they didn't put it on. The cutie that was on the segment with me is Somer Love, she has CF and we have gotten to know and love her lots. She calls Will her Superhero. What a doll. Anyway she said they interviewed her and she put a lot more stuff in the segment that didn't get aired. That's too bad. She wanted to plug CF research. But for those of you that want to, you can go to this site and click on Will's picture on the right. That was him and his sister right before his surgery. Jerome Lady Tigers--you were on the news in Salt Lake City (good picture). www.kutv.com/mostpopular I don't know how long it is on that page. Hopefully you can get it. Don't look too closely at me, remember I have aged a lot these last days and I hadn't had any sleep for about 30 hours. I have already heard from other people in the Salt Lake area who has CF and thought it was a good segment. They said they will now read the blog everyday. That puts a lot of pressure on this old lady. I have a neice that teaches high school english, I want to hire her to write these for me from now on :)
Our God is with us at all times, (even at 4:30 in the morning). We feel His plan for Will is a good one. We should be turning the corner today, I bet. Your prayers are powerful. Thanks you again and again. Love to all