We have a good friend named Somer Love who has CF also. She raises awareness for CF research wherever she goes. On her blog today was a notice about trying to get next month as National Cystic Fibrosis Awareness Month.
Help me fight cystic fibrosis by asking your Member of Congress to recognize May 2008 as National Cystic Fibrosis Awareness Month. Check out this website at the Cystic Fibrosis Foundation to see how you can help. Get involved click here; http://capwiz.com/cff/issues/alert/?alertid=11220821&type=CO It gives you a way to contact your representative. My nephew, Randy, told me today how to get links on these things. I hope I did it right.
Will had to go back on more lasiks (sp???) today because his lungs are filled with fluid. That's the medicine that takes fluid off. I know it seems like we keep going over the same ground over and over again. But it is getting a little better. Will's pain is lessening and when we get this fluid off, we should then be able to concentrate on the vent coming out. Hopefully. He tried to sit up today but it didn't go too well. So we will try tomorrow. His tube feeds are now all the way up to where they should be so with enough nutrients, he should be getting stronger. Tom and I still exercise him several times a day so he doesn't get too stiff. Angel and Aaron will be up tonight, Friday, to spend the weekend with us. Then they can exercise him for a while.
I think his attitude has gotten a little better. It helps having those lines out of his legs and letting him move a little bit.
Thank you for the prayers and we will let you know how things are going. The doctors say his kidneys are doing better.
God bless
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4 comments:
Hello Harbisons:) Happy Friday to you all! I am so glad you posted more pictures, it's so nice to see him, in any way:) You'll have to tell him I had a dream about him last night. Will has the best sense of humor, even in my dreams:) He made everyone laugh and we were all taking turns dancing with him...he's got some good moves in my dreams too:)
I hope today is a good day, and I am praying for Will's strength. Good for you, keeping him moving, and hopefully soon we'll see the benefits of the new feeding tube. I love you all and miss you! Give Angel hugs and kisses for me, please and each other, and have a wonderful weekend together.
Oh, also, wanted to thank you for included a pic of Juby...I still think about that little guy:) What a good pal he was!
Glad to see you were able to get the links up. Have a great day Will, Look forward to seeing you out of the hospital.
Happy belated birthday, Will! I'm sorry I didn't get this sent ON your birthday, but I had parent/teacher conferences on Wed. & Thurs. until late and for some ridiculous reason my computer at school blocks the blog and I can't read it or send comments. Anyway, I'm going to send you an e-card to your mom's e-mail address. You and Randy will have to celebrate your birthdays at a later date and I'm sure you guys will be wild and crazy when you do (watching basketball, drinking Pepsi, eating pizza......and the fun continues).
Will, you have to get better and get home as soon as possible! Randy is driving me crazy wanting to go to Jackpot all the time. I keep telling him to wait until you get home and then the two of you can go all the time. He keeps telling me I'm not as much fun as you because I tend to hover and want him to "cash out" when he wins. He says that Willie never tells him to "cash out" - he just wants him to have fun and enjoy himself. So Will, I'm probably being a little selfish when I say a few extra prayers for you to get better.
I'm praying today will be a great day and you will just keep improving in the days ahead. Enjoy the weekend with Angel and Aaron and we hope to see you soon. We love you guys and miss you terribly!
I am glad to hear that the pain is subsiding. Get some rest Will You have a big weekend ahead of you. I am glad Angel and Aaron get to come back up that will be fun!
Terri thank you for posting that link.
I have a had some friends already get some responses back from their letters.
It will be so exciting if we can get May to be National Cf awareness Month. It sounds like most the Representatives are behind it so keep your fingers crossed!!
Have a great Weekend!!
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