SO SORRY

I'm so sorry that I didn't get our pics up here. We have had a crazy weekend but it was wonderful. I do have some great pictures but we I do have an excuse for not putting them up on the blog. Will had to go into the ER again last night. His pain was very bad and there wasn't anything we could do. So they admitted him and will keep him at least over night. I will post tonight on his condition and will put pics up here if I can do that from the hopsital.

Take care and GOD BLESS

Will had a good night and I just wanted to share that with everyone. He hasn't had many of those lately. This 6 days a week might be getting us somewhere. Please keep praying for him. We had had Will's cousin, Joe, and his family up here for a few days. They left this morning and I will post some great pictures on here this weekend. Faith, three years old, is Will's god-daughter and she hasn't seen Will since right after she was born. Will and Faith have had some great visits together. She can talk and talk and talk, so I would put Will and her in the same room and shut the door. Very entertaining.

A very good friend, Megan, sent us this. Wow, talk about a gift of words. God is so amazing because He has given us incredible friends to help us walk through our journey, but more importantly He has given us His word to bring us peace. Megan, this is perfect, thank you.........





James chapter 1 verse 12, "blessed is the man who perseveres under trial, because when he has stood the test, he will receive the crown of life that God has promised to those who love him."

Then Megan writes to Will---You are blessed and Will loves the Lord and WILL receive that crown. His promises are the surest thing we can count on, and right here in His Word, He promises you that if you can hold strong right now, He has a blessing for you that is unfathomable to what could ever understand or comprehend.

Take care and have a great Friday. I will post pics probably on Sunday.

GOD BLESS

Tuesday night

Tuesday night and I just wanted to let everyone know that we are doing okay. We really, really appreciate all the comments and the emails that have been sent to me. I have read them to Will, so he does receive them. He has been really touched by them and the love that is shown.

Just wanted to let you know that Tom and I have been going through the training and we are doing well at it. I think we get gold stars or something. We still have a long way to go, but it isn't as scary as we thought. My boss is amazing to let me off three days a week to go in to training. Not many places would be able to do that. How extremely lucky I am. Kevin, you're the best.

Dr. Cahill called Will when we were on the way home last night from the training. She talked to me for a while and then to Will. It was very touching and everyone needs to know what a special lady (and doctor) she is. She just wanted to reaffirm that she wasn't giving up on Will or anything like it. She feels the home dialysis is going to be so good for Will because it will get more of the fluid off, give him the freedom to go places and do things he wants to do. It should also make him feel better with less cramping--so Will's excited about that.



Again, thanks for all the kind words and the love everyone has shown. We will keep you updated. Life is good because our God is good.

GOD BLESS

Sunday night

We had a great weekend with family and friends. What with Aaron's birthday on Saturday and then we had Kayli's dedication at church on Sunday morning. She was so cute in a little poofy dress and ruffles on her bum-bum. She really likes being the star of the show. Our pastor, Dion, , did a wonderful job of the dedication. Here is our family up on the stage promising that we will help Angel and Aaron raise up Kayli with God's word.

We have a great looking family. Kayli is one lucky girl to have so much love surrounding her.

Uncle Will is in the center watching to make sure Pastor Dion doesn't drop his girl.



We had a really nice lunch after church and then people started home. After everyone left, this is what Uncle Will and Kayli did. They just sat outside and were quiet. They both needed it by then.

This last picture is just a cute one. Little Carson, who is now in Kindergarten, is showing Uncle Will a ladybug that he caught. There is many more pictures of the day that I will put up here but the blog is going to be long enough already. So I had to stop with these for tonight.

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Now to the tough part of the blog. I want everyone to know that it has been very hard for me to write this blog. I have prayed long and hard for the right words. So here goes.... Will has most of his tests back. One of the first results we got was the reason for his blisters. They are from a blood disease called porphyria cutanea tarda. This has something to do with the way the blood makes the enzymes or oxygen or something like that. It is a enzyme deficiency, which spills out into the blood, and builds up in the skin. Exposure to sunlight causes the blisters. It is very painful but it can be treated with a medicine. We can deliver the medicine when Will is getting dialysis. The doctors just need to figure out which meds to use. They will let us know by the end of the week. So that was good that we found this out and Will just needs to stay out of the sunlight until he gets the medicine.

We were getting ready to leave the hospital when Dr. Cahill's assistant or associate came in with some news. It's not really the news we wanted to hear.

Will won't be able to get his transplant. The reason is because he has been diagnosed with cirrhosis of the liver. The only treatment for cirrhosis is a liver transplant. He can't have a liver transplant because his lungs won't be able to survive that type of transplant. They aren't good enough to stand up to that. Then, he can't have just a kidney transplant because the liver would ruin the new kidney. So all three head doctors, Dr. Cahill, the lung doc, Dr. Shehab, the kidney doc, and Dr. Hutsen, the liver doc. got together and decided that there is just no way.

This was a complete shock to us so we are still letting it sink in. There are many questions that we left unasked for the time being but we will ask them later. If you want to know more about cirrhosis of the liver, just google it. There are some great sites out there.

As you can imagine, we have had a long, emotional weekend of letting the family know. I know there are many people we should have called instead of letting them read this news on here. And I apologize now, but please understand how hard this is for us to tell people that love Will so much. There have been lots of tears shed in our household in the last couple of days. It's amazing how strong my son is and everyone is gaining strength from him. There is no self pity with Will and one of the first things Will said to me was "I feel bad for Dr. Cahill. She worked so hard to get me here today." We left the hospital very quickly then just because Will needed to get out of there and there really was no reason to stay. Will and I talked the whole way home and he was so concerned about how much hurt this was going to cause family and friends.. Once again, how amazing is that????

Some other news is that Tom and I are going in for training to start doing the dialysis at home. We start tomorrow at the dialysis center. The doctors feel that this is the next best treatment option right now. This is going to be so much better for Will. He won't have to go into Twin Falls four days a week. This is a six week course and Will will have dialysis at home for shorter amounts of time--two to three hours a day, six days a week. It will get more of the fluid off and he should feel better. One of the big perks about this is that it is portable and Will will be able to travel when he is feeling better. This is something that he has wanted to do a lot. Will has a few places that he wants to go, and he's going to get there for sure.

************

I know there are a lot of people that are mad with God right now, just as I was at first. It doesn't seem fair but life is not about fairness. Will can handle this just as he has everything else. He is strong and we know he is in God's hands. Through Him, all things are possible.

We have to remember that God's wisdom is perfect. His plan is perfect. It is our understanding that is not perfect. Sometimes we just can't understand why God does what He does. But who are we to question His will?

Romans 8:28 And we know that in all things God works for the good of those who love Him, who have been called according to His purpose. Aaron gave this passage to Will last night and it just fit perfectly.

Will has a very special purpose that God has given him. Because we love Will, we don't want him to suffer any more than he has, but God will see Will through this, and us too.

I know I have used this before but it is perfect for this blog, so I use it again....

God didn't promise days without pain, laughter without sorrow, sun without rain, but He did promise strength for the day, comfort for the tears, and light for the way.

He has blessed us in so many ways and we want to thank God for all He is doing for us and through us.

Saturday night.

Just a quick note because we are all tired here.

Will got out of the hospital and he's so glad to be home.

We will blog everything Sunday night.

Sorry about no pictures but I will post them tomorrow.

Just wanted to say a very very HAPPY BIRTHDAY, to Aaron
our son-in law. He is so good for Angel and his two little girls love him so much. We just love him and we hope many, many more happy birthdays to him. I would sing right now but really, I don't think this blog could do me justice.

See you all tomorrow night. The blog will probably be a long one so be prepared.

GOD BLESS

quick update

WE KNOW NOTHING YET!

I guess just getting upset with doctors doesn't do much. Nothing was done yesterday and Will is not too happy with everyone right now. He told Dr. Cahill if they(meaning the liver, kidney, dermatologists, and the vascular doctors) didn't come up with something he is going to jump in his wheelchair and go wait in their office until they see him. They must have heard because Will had to go down to dialysis very early this morning. They didn't want to see him sitting in their waiting room. So hopefully today we have some news. I will blog tonight if we do. Hope everyone is having a great Friday.

GOD BLESS

Rainy night in Salt Lake City-

Here we are on the fifth floor of the U of U. It's a little after one in the morning. It was a busy day with lots of tests. But we got into the hospital in time to watch the BSU team whip Tulsa. Go Boise Broncos! People kept interrupting Will but he got to watch a big portion of the game. He did have his BSU shirt on and we thought of our good friends, Curt and Megan, in California. They probably they had their shirts on too as well as most of our friends.

When we got here we went to do labs, xrays, and PFTs. Then Dr. Cahill called in a favor and got us right in to see a dermatologist for these blisters that he's been having. The dermatologists all came into Will's tiny exam room to look him over because nobody could figure out where these blisters are coming from, but they know they need to be addressed so they did two punch biopsies and we should have some answers tomorrow afternoon about those. Dr. Cahill even came down to their office to see what they were doing to "her guy."

Will's PFTs (lung function tests) were down but that's probably because he's overloaded with fluid again. He will do dialysis in the morning. Right now he's in a lot of pain that just started late tonight. We will be going down in an hour or two for a CAT scan with contrast to see what might be wrong with his belly. So no sleep for the wicked tonight.

We haven't seen the kidney doctor or the liver doctor, but knowing Dr. Cahill and her wonderful staff, we will be seeing them tomorrow for sure. They really know how to get things done. I will blog tomorrow night with tests results, and hopefully, results from doctors visits.

Will really misses his little girl, he got kind of use to playing with her everyday. So they talk on the phone. Well, Will does most of the talking but this way she won't forget her Uncle's voice. It's cute. I better go and help Will, he has to drink that nasty stuff for the CAT scan.

The Lord answered my prayers for more patience. He sent me a little, let's see if it's enough to get me through tomorrow. If not, I hope someone can come bail me out. Just kidding.

I PRAY THAT GOD'S BLESSINGS ARE POURING OUT ON ALL OF YOU.

Our God IS an awesome God.

News from SLC

Dr. Cahill's chief, Tauni, called and told us that Dr. Cahill wanted Will down so they can run some tests and see what's going on with those blisters. We will "probably" be admitted and then run the tests. So we will leave early tomorrow morning, Wednesday, and go from there. He will run a PFT, Xrays, and labs before he goes in. He's not too happy about it but what can we do??

Let me just say for the record..I have the best boss in the whole world. He just tells me not to worry about my job, take care of Will first. I am very, very blessed to work in the best school in Idaho.

BUT.... Maybe while we are in we can "accidentally" bump into Dr. Hutsen (liver doc) and get some answers. Accidentally might mean sitting on his car in the parking lot. Lord forgive me now, I'm a desperate mom.

Kayli and Uncle Will were having this incredible, deep conversation (I think it was something to do with a sponge named Bob maybe??? I really don't know because they don't include me in the conversations). She was looking so enthralled that I just had to take this picture. I think she would believe Uncle Will even if he told her something so silly like Yankees are going to win the World Series (that was a dig just for Coach, all you other Yankee fans, I apologize).

I will update when we know something. Pray for Will and for God to bring me patience....I'm all out.

GOD BLESS YOU ALL

Sunday night

My Sister from California brought to my attention that I didn't post this on Sunday night. I must have not hit the right button or something. Anyway, this was Sunday's blog. SORRY. Thanks, Mickey. love ya

Well I promised on Friday that I would post more pictures, so here they are. We didn't get many with Uncle Will and Kayli. Mainly Will had a tired Sunday so he slept a lot. We had Kayli all day because mom and dad went to the motorcycle races. It was tooooo cold for Kayli so we got her. Great day for us. What an absolute joy it is to be Grandparents! We feel very blessed. We took her to church this morning and I think Grandpa pinched her so he could take her downstairs with the older kids at Sunday school I'm on to his ways. Poor Kayli.

Here is Uncle Will singing Kayli to sleep. Isn't she precious, what a great gift from God she is for this family!

Will is still suffering from the knee blister. It looks awful and we have to keep the dressing on until Wednesday. I hope it is healing up. So really there is no new news except what I shared on Friday. Please pray for Dr. Hutsen to give us a call early this week with good news that we can proceed with the kidney transplant. Our good Lord knows how much Will needs it.

I hope everyone has a great week and I will post a blog as soon as someone calls me, hopefully the first of this week.

Kayli in her purple pj's. She's all toasty warm.

Here I think Kayli is thinking of something to do to Grandpa. She kind of looks a little mischeveous, doesn't she?

I don't know what she's thinking here. It's just a funny face shot.

GOD BLESS

Friday

Here's the newest picture. The guy in red holding Kayli is none other than her Uncle Will.

Isn't this the sweetest face ever??? Oh, I think I have said this already, huh?

All week, and nothing from SLC. I know how many of you are waiting to hear and so are we. We just have to be patient some more..............Lord give me strength.

Will has been having a lot of trouble with water blisters this last couple of weeks. We don't know why. But he has a really, really bad one on his knee. It covers most of his kneecap. It makes walking very, very difficult and painful. We had a wound nurse come out this morning and dress it. It was nasty. It might take a month to heal when you are as compromised as Will is.

My school had so many cases of the flu that we had to close today. Don't worry, I am using lots and lots of hand sanitizer. So I got a three day weekend and I was so excited about watching Kayli all day today. Well, with the wound nurse spending almost 1 1/2 hours with Will, I didn't get lots of time with her. Then I had to take her in and meet Angel because Kayli had to go get her two month shots--three of them. I don't want to watch that ever again. People think I am so tough but I cried like a baby when I saw the nurse stick her three times. I put out a "hit" on the nurse but don't tell anyone. lol Angel did well, even if she kept her eyes shut.

I received a short call from the liver doc, Dr. Hutsen's nurse this evening. She just told us that she thinks Dr. Hutsen will call us the first of next week. He is waiting on another doc to get back to him. I don't know what kind of doctor or why, but I'm sure I will know when he calls (I so want to put the word "finally" at the end of this sentence, but I won't). Tauni, Dr. Cahill's nurse called to check on Will and she told me that Dr. Cahill will try to reach Dr. Hutsen and find out what's going on. So maybe next week for news on whether Will can proceed with the kidney transplant or have to do something about his liver first. ???????? I feel like I'm writing a soap opera and I keep having you all "hang on" until next week to find out what's happening. I'm sorry about that.

Will's Grandma Cherie had a birthday this week and we all wanted to say HAPPY, HAPPY BIRTHDAY to her. She's such a sweet lady. We love you lots, Grandma. See you soon.

I will get pics up on Sunday. Have a great weekend.

GOD BLESS

Saturday evening

This is the first time we used the new picture for the top of the blog. I hope you will tell me if you like it. Will bought Kayli the little shirt to watch the game tonight. Then they shared the chips (an old friend of ours gave them to us. He's a die-hard BSU fan-thanks Steven). I don't think Kayli got very many of them. Well, the Broncos won tonight--yea. I think half our town went to the games. Go Boise State Broncos.


Now to what's been happening with Will. He spent the the last three days in the hospital. It all started on Wednesday night around midnight. Will was having excruciating pain in his stomach. He was up all night with pain. By 8 in the morning he was wanting us to take him the ER. We were all worried that it might be the spleen or the liver. The pain was way intense.
So we went to Twin Falls, we didn't want to take him all the way to SLC if he was in that much pain. We spent nine hours in the ER and then they decided to admit him because the pain was so bad. He was admitted to his old floor and his old room even. It's been over two years since we have seen those friends on that floor. About four in the morning we had to move to another floor because they needed the suite. So by six in the morning we had a new room. We had never been on the second floor but it was a nice place.



One of the funny things that happen (you know you have to find "funny" in the crazy things so we don't go crazy) was that when we moved down to the second floor at 6 in the morning, after waiting two hours for the transport people, we had a nurse that said he needed to measure all of Will's scars and put them on a drawing of a torso. Why???? I don't know, but if you have seen Will recently you know he has a few. So, an hour later he had the measuring done. Will was not happy about it so he just went to sleep while the nurse was doing that. He was an older nurse so I don't know what he had going on but we have never had to do that before and I can guarantee you that Will won't let it happen again either. That's not the way Will likes his mornings. Come to think of it, Will doesn't like his mornings any way.


Will had a cat scan with contrast done that morning to see how the spleen and liver looked. They all checked out fine except that they were both enlarged considerably but they have been like that for a while now, so nothing new. We had to wait for a few days for some tests to come back but they all came out good except for the high liver tests but we knew that. It all comes down to Will getting a new kidney. I have more to talk about but this blog is long enough already so I will save it for tomorrow on the normal blog

Thought I would share a few pictures. Will didn't want the baby to come up to the hospital because of all the bad bugs around. So she stayed away for almost three whole days but then they popped in right before we got discharged. So his is Will with this little girl for her first visit to a hospital to visit Uncle Will. I pray that she won't spend too much time visiting Will in those hospitals.

Below: Here is the two just staring at each other. I think in the one below, Kayli is singing Uncle Will a song.




Below: Then a few minutes later they were both asleep.

So now we are home and we will await the doctors wishes about the transplant. I did call three different days last week but they still didn't have any answers yet. Soon Will will hear something.

All in God's perfect timing. I will have more patience this week.

We will go to church in the morning and sing His praises for all the things that has been happening in our lives.

I will pray that God pours out His blessings on you all.

Happy Sunday to Everyone!!!

Above is our little girl who has decided to melt our hearts more than she already does because now she can smile. This isn't one of the best, but if I put one of her big smiles on here, everyone will be wanting to go play with her. I have a hard enough time trying to get her to myself as it is.

Below is a picture of her trying to understand why Uncle Will has her doing exercises already.

These are the exercises that she has to do. Uncle Will is such a slave driver.


But she would do anything for Uncle Will.
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Below is a picture of Carson and Candace with their bird house that they made. Angel took them down to the Museum in town and they invited the kids in town to make bird houses. They look like they like each other, don't they?

On Sunday, Will was going to spend the day watching all the games even though Dallas doesn't play until Monday night this week. I decided to go with Angel, Carson, Candace and Kayli to watch Aaron race his bike. It was somewhere in the desert by Boise, out in the middle of nowhere. I was very nervous at first but Aaron is a good rider----in fact, he won a first place trophy for his class. Yea!!!!!!!
Here is the trophy and a proud Dad holding his two girls

Here is the number one winner with his number one family.

I'm glad that this was the weekend that Candace was down so she could watch her daddy.



Here he is on the course.

It proved to be a very fun day. I was really praying that I didn't watch any wrecks and God answered. No one was hurt, YEA!!!

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So now about Will, we still haven't heard anything from anyone. I am going to start calling docs tomorrow morning and see if I can get anywhere. I will let everyone know when I know something. Will hasn't been doing much lately, just hanging around and going to dialysis. Angel is back to work part time last week and Will and Grandpa got to watch Kayli last week. Will really loved that and I think Grandpa did too. They both did really well. They will be watching her a lot but not on dialysis time. That would be too hard on Kayli. She doesn't like to see Uncle Will poked.

Have a great week, the weather is going to be cooling off some.

GOD BLESS.

PS. HAPPY BELATED BIRTHDAY, JUDY.

Tuesday night in Salt Lake City

Well, I don't know what happened. We got down here yesterday evening. Dr. Cahill wanted to see Will before the biopsy so we snuck into a clinic and Tauni and Dr. Cahill came and saw him. She cleared the way to do the procedure but she did say "All this will go away if we just get the blankety-blank kidney." and I agree.


So to make a long story even longer, Will came into the hospital at 9:00 this morning. They took him into same day surgery. He was all preped (or is it spelled prepped???) and Dr. Hutsen, a great liver doctor, started to stick the first needle into his side and Will just started spurting. Dr. Hutsen said that he wouldn't be able to do the biopsy. There is something just underneath his skin that caused his bleeding , don't quite understand it all. It isn't the aspirin because he's been off it for ten days now. They just don't know what happened or why.

They sent us back to the hotel and told us to wait. He said he might be able to do the biopsy another way. Dr. Hutsen said he needed to talk it over with Dr. Cahill what might be the next step. Tonight Tauni called and said they had a long meeting and they decided that they can't figure out what to do. So they told us to go on home because we needed to set up dialysis. So we will be coming home on Wednesday. We know nothing besides what I told you all. What this means for the kidney transplant--we don't know.

After we left the surgery room, we visited some people from the hospital. One of the them was our Sumer Love. She was in the hospital for a two week clean-up. She gets out tomorrow and she looks probably better than I have seen her in years. So Will and she were able to visit a little.

Then we went to the fourth floor, where we spent the biggest part of our time last year. Some of our favorite people were working in ICU. Caroline (you all might remember her as Mama Bear) and everyone. I took pictures and I will put them up here when I get home in the next day or two. We will be glad to be going home without going into the hospital for a few days.

So God protected Will once again, there must have been a very good reason not to do the biopsy. God had his arms around Will for sure, as always.

We will blog when we know anything else. Thanks for the prayers.

God listened.

GOD BLESS

Sunday night

I know that I said on the blog yesterday that I wouldn't blog until after the procedure on Tuesday ,but these pictures were too cute to wait.

The first was Kayli's first Cowboy game with her Uncle Will.

She was getting "lessons" on what was going wrong in the game. Will was also telling her about the new Cowboys' Stadium, the Stadium's first game was tonight. That thing is massive!!! The loss was very hard to take so Kayli had to go home. It was hard on Uncle Will too. Next week, right Dallas?

Below: Here is our Kayli's good friend, Riann, born just two weeks apart. Megan Osborne brought little Riann back to Hagerman to meet all her hometown people. Trying to get the pictures were so funny. (Kayli is on the right).

Here is Megan (right) and Angel (on the left) with their new additions. We really miss these friends Megan and Curt, but they are doing so well in California. They are happy there but I think they would be happy anywhere.

Hope everyone had a great weekend.

So we get up early tomorrow morning and on to SLC. We know God has Will in His hands.

I pray that God blesses you all this week.

early Sunday morning

We did hear from SLC late Friday evening and the liver doctor wants to do the liver biopsy on Tuesday. We have to go down on Monday to get tests run. Then they will start about 9 Tuesday morning. We don't know if Will will be admitted in the hospital or just same day. We will have to just wait and see. So finally we will get things going again. I will blog on Tuesday when we know anything. I take the computer with me in the hospital so hopefully you all will know as soon as possible.

We went to see our baby tonight for a few minutes. Grandpa was holding her and she was just so awake. I think they were having a very good talk. Aw....so sweet. She's looking so much older, isn't she?

Please pray for some good news about the liver tests. We continue PRAYING for God's perfect timing.

GOD BLESS

a very fast update

Tauni (our friend and transplant coordinator) called this morning and told us the doctor wants one more set of blood draws to check on how things are clearing out. Our home health nurse, Heather, is coming 10:30 tomorrow morning to do that. Then she gets it to SLC and then they make us wait some more. No, that sounded bitter but really I am not. That's just the way these things go. So I will let everyone know when we know.

Will didn't have a great day today. He was having lots of trouble breathing. They had to take 4.7 liters off and he's hurting so much tonight. It should be lots better in the morning. He goes back in to dialysis tomorrow.

I want to shout out (isn't that what the kids are all saying???) to Tanya, our CF buddy from SLC. CONGRATULATIONS!!!! She is celebrating her one year anniversary of her new lungs today. She is just the sweetest lady and we were all were praying for her last year at this time. She's is just doing great and she wants us to pray for the donor family, because, once again we might be having a celebration but that family is having their own anniversary to get through.

So we get the blood drawn and we wait.

P.S. For all those that said it couldn't be done---It is possible to do the blog and not post a picture of our sweet baby. tadaaa (but, it won't happen often.)

GOD BLESS

I know that this is being a little bit ridiculous, but really I can't help myself. Here she is again-Kayli Mae. She's looking so alert and almost old already (did I mention how smart she is?)

and that's Kayli with her main guy--Uncle Will. She's trying to hide her face, you would think that she doesn't like her picture taken all the time, but she told me it's okay.

Below: Angel took these with her phone and sent them to us while they were in Boise visiting her other grandparents (Aaron's mom and stepdad)
Ya-Ya (that's what Kayli calls her) loved having her for the weekend and she kept up the "Grandma spoiling" that I have found so enjoyable. Kaylie got to meet lots of family that she hasn't seen before. I hope I can get some pictures of them up here soon.

Angel didn't tell me what she was looking at, but it sure was interesting.

her button nose is so cute.

okay, enough already---on to Will.....

We got a message on Friday that they have recieved the results of the blood work and they have given them to the doctor. Kelly said that we should hear from them probably by the first of the week. Oops, Kelly forgot to say which week, silly lady. Anyway, I hope we hear something from the liver doctor about when we can come down and do the biopsy. I will let you know.

Will went to a football game in Boise with Coach and Tyson, his son, on Friday night. It was one of the few times Will has got to go somewhere that didn't have to do with doctors or dialysis in forever. He really enjoyed himself and before any of you ask, no, I didn't follow them up there and spy on them. But the truth be known, I was tempted. I knew he was in good hands. Hopefully he will be able to do that again soon.

We have a good CF friend in SLC that has just had to go into the hospital after being out for over 18 months. Her name is Sumer Love and we have her blog on our site if any of you want to check it out. Anyway, I know she could use prayers and if any of you want to leave her a message on her blog, she would love it. Go on her blog site and look at what she does with her hospital room. Every time she goes into the "joint" her mom and friends decorate the room in a theme. It is so awesome how they do it. So would you all say a prayer for her speedy recovery and another 18 months out of the hospital. Thanks.

I was sent an email by a good friend of mine that just had a song on it. It lets you see the words as the guys sings. It's a beautiful song and I thought I would like to share it with you all. It moved me and said a lot that I wish I could say. I could really drink from my saucer. Please open the link and enjoy the song.

GOD BLESS

http://gloriousgrace.net/saucer/saucer.html

update

Here is Kayli trying out her swing at Grandma's house. She's still making up her mind if she likes it or not. I think she does.

Below: Here is Kayli just hanging (literally hanging) out with Grandpa tonight. She is so alert, but I think she's really wondering when Grandpa is going to take her out to see the horse.

This will be just a quick update to keep you all in the know about what's with Will.

Will had dialysis yesterday, Monday, and today, Tuesday. They drew blood both days for different tests. I talked to Tauni (our transplant coordinator and friend) about when we might be going back to SLC for the liver biopsy. She told me that when (that's the big ?????) they get the results of the two blood tests, they will take them to the docs and decided when. So we won't know probably for a few days anyway. As soon as we know, we will let you know.

Will is very happy to be and little Kayli came over tonight just to lay in Uncle Will's arms (maybe ours too ). That little one is sure something special.

I know I keep saying this over and over, but thanks so much for all your prayers and good thoughts. They help SO MUCH!

GOD BLESS YOU ALL.

Sunday night ---not in SLC

Continuing saga of the life of Will

Well, we have changed our plans again.
First, we are back home tonight. As I told you last night, I came home to get my class ready for a sub for a couple of weeks. I stayed at the school very late and then got up early to go see our baby before I left. Then I got the call from Will saying he's coming home.


This is what happened. He was up for the liver biopsy on Tuesday afternoon.They wanted to keep Will there until the biopsy. One of the docs figured out that Will has had aspirin every day for a long while. They don't want to do any procedure until that has a chance to get out of his system. It works as a type of blood thinner. So we might be waiting for another week or two before they can do that. There was no way that Will was going to wait all that time in the hospital so he advised the docs that he was going home. Dr. Cahill said she couldn't see why not. So I left Hagerman around noon and went back up to the the big city and we drove home tonight. We don't know what day we will have to go back yet. I will put it on this blog when they let us know.

NOW FOR THE REAL REASON WILL CAME HOME.......

HE WAS MISSING HIS GIRL
ABOVE: Will was letting her know what those docs did to him.
Kayli wasn't happy about that. Those doctors better watch out.
Just kidding---we have the best doctors ever!

Will was trying to put Kayli to sleep. She's had a busy day....

because it's her first month birthday. Yup, she's one month old today.
She got to dress up for church this morning but she wasn't ready to say goodbye to Grandma because I was leaving to go back to SLC. She let everyone know that she wanted to go with me. Mom doesn't listen too well. I tried to explain it to Angel but---no go.

Here's the happy family getting her in her little front back pack. I wonder what it's called. Anyway, they walk to church on these pretty days. Aren't they a great looking family? Maybe I'm prejudice just a little.

Below: On the way home we stopped by and saw Sarah and her two kids in Tremonton. Will and Sarah didn't get to visit at all at the hospital. They had a good visit. We had lunch at Wendy's. Nothing but the best to celebrate Will's release from the hospital.

We also stopped by Danny and AnnMarie's on the way home. We couldn't stay there too long, for one reason Will needed to get home to his baby; the other reason is because those two are still in the yucky, sweet lovey, dovey honeymoon stage. It was a little toooo much for us but we are happy that those two are so happy.

So once again we wait until they let us know. Waiting isn't what I'm good at but what can you do??? I have all my classroom stuff done for a couple of weeks so I have it easy at school this week. We should know on Tuesday when we go back to Salt Lake. I will let you know.

God has His perfect time for all this to happen. We know He's got everything taken care of for Will.

It was a great Sunday to drive around and Will was very, very happy to crawl into his bed tonight. He'll sleep well for sure.

GOD BLESS

update early Sunday morning

Will is still in the hospital. I came home to Idaho so I could get all my stuff ready for a sub for next week. Tom stayed with Will in SLC. The docs want Will to stay in the hospital until it's time to do a liver biopsy Tuesday afternoon. This way they can watch his numbers and not put him at risk for anything. I don't know what "anything" is but I'm glad they are being careful. Will sure isn't. He's not happy about being in there at all. They aren't "doing" anything and it's very hard to justify staying in that place for, as Will puts it, "nothing." The doctors say the soonest he could be going home would be the later part of next week. They will have answers about his liver then.

I will go back this morning some time and then maybe we can sneak him out for a drive or something. If any doctors are reading this---I'm only kidding, I would never take him out without permission. wink, wink.

He had dialysis today and they were able to take more off than yesterday so that's good. They gave him another dose of antibiotics with dialysis and then they will give him another on Monday when he has dialysis again.

I will blog tomorrow night and let you know how his day went.

I hope everyone has a great Sunday and they do something special. Summer is almost over for all of us, don't waste it. God put this special day just for you. :)

GOD BLESS

Friday update from SLC

I said that we would probably have a quiet day and we did. Will slept on and off until about 3 this afternoon. His arm is feeling so much better so the meds are working on that. The liver docs are still doing more testing and we probably won't know anything until the first of the week. Will slept through most of Danny (his cousin who just got married) and AnnMarie's visit. They said they would come back tomorrow when he might be able to stay awake more. I don't know when he's going to go down to dialysis tomorrow, but he will get another dose of antibiotics then.

His level of prograf (the anti-rejection med) is slowly coming down so that is good news. We had another good visit with Sarah just before her mom took her home to Tremonton. We might be able to see her on our way home, hopefully. Will and Sarah didn't get to visit at all while she was in the hospital because he wasn't feeling well then.

Kayli called Uncle Will a couple of times to tell him that she's missing him a lot. When I talked to her she cried so I think she misses me the most, just don't tell Will.

We know God is hearing all your prayers and we want to thank you for them. I will blog tomorrow night again.

GOD BLESS

update from SLC

Even just being gone from our little girl for a few days is killing me.

Angel knows that, so she sends Uncle Will, Grandma and Grandpa little pictures on the phone. We love getting them so much. She just has a way of brightening our day. I will share a few with you all. Isn't she the sweetest thing?

Below is her loving her little pink bathtub. She's going to be a fish, I think.

(I know the coloring is bad but it's good enough to get the picture.)

So on to Uncle Will's day, I mean Will's day. He had an ultrasound done of his spleen and liver this morning first thing. Then we tried to make our appt. with the liver doctor. They couldn't see Will because he's now an inpatient. How silly that is. But it did work out well because the special doctor that we needed to see just happened to be the one that's for the hospital patients this week. God just works great things all the time. So he had some tests run and then he came in and saw us tonight after six sometime. He told us a few things that they are looking at and testing for. We don't need to get into all that but they really don't have any definite answers yet about what is causing his liver and spleen to act up. They are going to run a whole bunch of blood work in the morning and that will rule out a lot. Some of the tests results won't be back for a few days so we don't know if we will know anything before they kick us out of here. We really, really like the liver doc. Will and he just hit it off and he's very intelligent. Knows his stuff and we are comfortable with him. Praise God.

His infection in the arm is looking a little better we think, so the antibiotics might be kicking in already. They did do an ultrasound of the arm this afternoon, I know what you're asking yourself (it's the same thing we did)---why didn't they do the two ultrasounds together?? But anyway we did get some good news. There is no blood clot in the arm. YEA!!! It's still really sore and swollen.

Dr Cahill came up and visited a little. I think she misses Will a little. So she says that once we know that his infection is going away we should be able to finish the meds at home. This just might be one of our shorter stays. She said maybe even by Sunday. We have seen a few of our old friends. We miss them but I wish we could see them somewhere else.

We really don't know how the infection got in there and to what extent the damage is but we will by the time everyone is finished with him.

One of his anti-rejection med levels are really high so they are watching that closely also. He didn't have a good day and it could be caused by the med level, the jaundice, the infection, or all the testing that they are doing. Plus he had dialysis today, so he hasn't been able to keep anything down. He didn't even watch the BSU game, but he did TIVO it so he can watch it when we get home.

I know tomorrow will be a much better day. I am so glad this happened on a three day weekend. Besides the blood draws, there shouldn't be that much commotion in Will's room tomorrow. He will have some rest time.

All his old doctors are the ones that are the "floor" doctors this week. How great is that. It's nice not to have to train new doctors.

By the way, Sarah, our transplant friend that you all helped pray for right before Will got his lungs, well, she's on the same floor just two doors down from Will. She had a little pneumonia but she will be going home tomorrow, Thank the good Lord. We have had some good visiting time.

I will post more tomorrow night and let you how much better Will is feeling.

GOD BLESS AND THANKS SO MUCH FOR ALL YOUR KIND WORDS AND WONDERFUL PRAYERS.

Wednesday in SLC

Well, we had to come down to SLC earlier than we expected. Will's left arm got an infection in it and they tried a few days on oral antibiotics. It didn't seem to work and he was getting worse so the dialysis center suggested we take him into the ER. We called Dr. Cahill's office and they told us to get down to SLC asap. We left after dialysis and after I got my class ready for a sub. Then we left and got up here around 2 in the morning. We got up early to get in to see the good doc. She told Will that he was going to have a "sleep-over" so everyone can find out what's going on. Will had lots of doctor visits and lab draws and xrays today and we don't know anything yet. He is still going to try and get to his liver specialist tomorrow (Thurs.) morning for his appt. Hopefully we can still get things done at that appt. But, who knows? They have Will on IV antibiotics and I think it's already starting to work. We will let everyone know when they tell us anything. I will for sure blog tomorrow night to tell everyone how that appt. went.

Coach called and told me to remind Will that they have a date to watch the BSU game tomorrow night so he better get home in time.

Please, Will needs prayers for his infection to clear up and for his liver appt. We want them to find something really easy to fix and then on to transplant. AMEN

GOD BLESS

Sunday night, already the end of August.

Here are the pictures I promised you on Friday. The first two are my favorites. It's hard to capture the "love" that surrounds those two so I will keep trying.

Below: Here is my little girl celebrating my birthday with me. What a present she is!!!!!

Here is Grandpa Tom getting piled on by Candace and Cali.

Curtis and Jen came down for the weekend and it was a great time. Will and Curtis are close and Jen just fits in so well with those two (Heaven help her).

Below: Kayli is telling Uncle Will a story, a story only Uncle Will can hear.

It must have been a funny story, it cracked her up.

And she's still laughing--well, really she's starting to cry, but to me it looked like she was laughing.

Below: Here is Aaron with his girls, no wait, not just girls-Carson stuck his head in at the last minute.

Below: Here is my step-mother, Cherie, helping me celebrate my birthday also. I can't find the picture I took of my dad. I must have deleted it, oops, sorry Dad.

Below: I am sitting outside on our back lawn and the kids, Candace, Cali (Curtis' girl), and Carson. We were watching the lightening show. Kids are so much fun with their imagination.

Below: Here is my little girl playing super"girl"

We had a fun weekend and Will is feeling okay, he feels the best when he's got his little love in his arms. We are going to SLC for a doctor's appt. on Thursday (see the blog before this one). I will blog when we get back from the appointment.

GOD BLESS